Patient Comments: Shingles - Experience

Please describe your experience with shingles.

Comment from: Cindy R., 55-64 Female (Patient) Published: March 07

Two years ago this month while sitting on the floor, I suddenly had a horrific shooting pain, like a 12 inch serrated knife blade shoot through my right eye. Within a few seconds, I saw smoke, lightning flashes then my world went dark gray. Prior to this experience, the only thing I had noted was feeling of skin crawling, burning in my throat, an earache with some dizziness and an intense itching buried in the death of my skin. It was horrible! Since, my diet has had to change because I cannot eat certain foods like oranges, yogurt with fruit, etc. More so, my life has changed! This night two years ago the cornea of my right eye ruptured and a shingle now lives active on the front of my eye controlling my every move and emotion. I no longer work, still have intense shooting pain when I least expect it, cannot drive at night because of light sensitivity and fogged vision and I have to regulate my every move and reaction to stressful moments just to exist. I have been through a gamut of health care physicians who blew off my symptoms because there are no external signs of rash, scars or symptoms. The only person who took me serious, other than my significant other, was my optometrist. He is the one who finally came to understand I am an internal shingle carrier. Shingles will change your life when left untreated. My only suggestion is twofold: first take the vaccine if you possibly can as it may not prevent shingles, but it will reduce the magnitude of your symptoms and length of stay. Second, when you suddenly experience burning, itching, swelling in lymph nodes, or an unfamiliar rash - seek attention! I know one day I will be blind from another opening of my cornea. Until that happens I will give my body the respect it deserves, listen wisely to what it is telling me, and will take my acyclovir every single day for the rest of my life because my little eye shingle refuses to go dormant and gets angry very quickly. I share my experience because I would never ever want your life to change as has mine.

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Comment from: 45-54 Female (Patient) Published: October 15

I am a 53 year old female with lupus. I was diagnosed with shingles on New Year's Eve. It was on my right scalp, forehead and also affected my right eye. I started anti viral medication, and drops for my eye. I am still on drops for my eye. I still have itching on the scalp and forehead and when I scratch it seems to break out. I use Capsaicin for the itching and it does work but it hurts like crazy if it accidentally gets in my eye.

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Comment from: PHNSufferer, 55-64 Female (Patient) Published: October 11

Quickly...1978, first round of Herpes, and future bouts came with a sticker pain in right ear, traveled down to mouth causing Herpes outbreak. Years of this. Fast forward to near 50 years old. Headache where half of face itched, stung, burned, ached in right temple, ear ache, worst headache ever. Neuralgic pain as well. Doctor prescribed meds for migraine. No success. Still got the headaches, aching, and itching and neuralgia, ear pain. Pain jumps from ear to eye to forehead to cheek to teeth back to temple. Eyelid burns and did have droopy eyelid about a year ago. Prescribed Neurontin from neurologist. Helps. I don't know if it is shingles or herpes. I did only have 1 or 2 extremely painful pimples, twice in temple area, another time once on temple, chin. Get "hot spots" on half of affected side of head like neuralgia. Mostly confined to the right side, where original Herpes symptoms started. Deal with on a monthly basis. Just getting over a bout, having itching in the area and have to be careful not to get upset, as if it isn't "finished", will get another round of it. This time, dull ache temples, eye pain, nose pain, burning eyelid and eye blurry, itching. Neurontin. I don't know what I would do without it. I feel like I am the only person who has this and hope that this helps if there is anyone out there with similar symptoms.

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Comment from: sMEKENS, 75 or over Female (Caregiver) Published: January 23

My husband has had the shingles for 3 years. The treatment the doctors have him on is hydrocodone and gabapentin. He is always in pain.

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Comment from: grammazr, 45-54 Female (Patient) Published: January 10

I first got shingles, when I was 23 years old, and have had them 5 times, they are the most painful thing I have ever had! Right now I think I'm getting them again. They want me to get the shingles shot, because I have an auto-immune deficiency, but I'm not a needle person, I will be taking an antibiotic! Anyone who has had this knows the pain, I still have pain in my right hip and leg!

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Patient Comments

Viewers share their comments

Shingles - Effective Treatments Question: What kinds of treatments have been effective for your shingles?
Shingles - Symptoms Question: What were your shingles symptoms?
Shingles - Pain Question: Please discuss your experience with pain caused by shingles.
Shingles - Vaccine Question: What was your experience with getting the shingles vaccine?

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