Scleroderma - Describe Your Experience

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What is scleroderma?

Scleroderma is an autoimmune disease of the connective tissue featuring skin thickening, spontaneous scarring, blood vessel disease, and varying degrees of inflammation, associated with an overactive immune system. Autoimmune diseases are illnesses that occur when the body's tissues are attacked by its own immune system. Scleroderma is characterized by the formation of scar tissue (fibrosis) in the skin and, potentially, the organs of the body. This leads to thickness and firmness of involved skin.

Scleroderma is classified as localized or widespread (systemic sclerosis with a tendency to affect internal organs). Systemic sclerosis is further divided into limited and diffuse based upon the extent of skin involvement.

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See what others are saying

Comment from: kelticlady, 45-54 Female (Patient) Published: November 29

I am 49 years old right now. I was diagnosed with scleroderma in 1992. Two years later, I was in the hospital with congestive heart failure. I really have not progressed much since then. I do have trouble with my hands and arms. They do not straighten out very well. I take a series of medicines: Cuprimine, Captopril, and Diltiazem. I do suffer emotionally and from depression. That has been the worst for me. I do feel lucky to be here today, and I try to be thankful for the time I have been given. I always get my rest.

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Comment from: lee, 45-54 Female (Patient) Published: March 13

I was told I had scleroderma in 2004, I was bed ridden for nearly 3 years. Two years ago I went on a course of chemotherapy, which has help me a great deal. I can move around and do things again. I have a bit of my life back, even though I will never work again at least I can do things. I keep getting bad reflux which ends up in my lungs so I am ending up with pneumonia; this has started about 4 weeks back. I am not sure what the next course of action is, I try anything that has worked for others and I have been on many medications, most didn't work.

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