Patient Comments: Restless Leg Syndrome - Describe Your Experience

Please describe your experience with restless leg syndrome.

Comment from: Karaline, 75 or over Female (Patient) Published: December 02

I have restless leg syndrome; I experience RL just about every night. Even sometimes in the day if I should perhaps choose to take a nap. It starts in the buttock area and works its way down. If I take a 0.5 mg ropinirole at 7:00, another at about 9:00 then hopefully the last one at 10:30 or 11:00, sometimes the first pill will work, but mostly I need the second one to finally feel relief about an hour later. I take the last one just because I know if I don't, I will wake up within 1/2 to one hour with RL. After this, I can sleep without RL. But I cannot stay in bed for any length of time in the morning because it will start again. I won't take any more pills in the daytime.

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Comment from: dave, 55-64 Male (Patient) Published: December 06

I have had it for at least 15 years and it has worsened. It kicks in as early as 10 am, but most times 4PM on. Mirapex 1gm takes edge off, but takes too long to take effect. I am willing to be part of a study if located in Great Falls, MT. I am tired of the same routine of pain and restlessness every single night, I need a permanent solution.

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Comment from: Annie, 55-64 Female (Patient) Published: April 22

I have read everyone else's comments and am so amazed that this is a "condition" and that it is painful! I have had this ever since I can remember. As a little girl, I used it to rock myself to sleep and I still do. It's worse at night, especially in front of tv or when I work at my computer. My right leg will rock at a very fast speed but with no discomfort or pain, as long as I keep on rocking it. Once I get up and do other things it disappears. Just before I fall asleep it happens again. I have never used any medication for it and will not seek any for it. I assume it could be connected to ADHD children and adults. Although I only started taking 5mg Ritalin pd at the age of 58 it has had no effect on my RLS. By the way, the Ritalin is the best thing I ever did! Good luck with your painful RLS!

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Comment from: Shell, 25-34 Female (Patient) Published: October 25

I have had RLS for a few years now, that deep ache, which turns into a burning sensation, which in turn causes my legs to twitch, and I mean twitch. I can be flapping about all night, this twitching or jerking has now started to happen during the day if at rest. I'm 32 and find it extremely embarrassing if I start to twitch when I'm out, not to mention making trying to sleep at night a nightmare. I have spoken to GP, who just grinned and said restless legs syndrome and basically sent me packing, why do they not understand the impact this can have on someone's life!

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Comment from: datmybaby, 45-54 Female Published: June 09

I have had RLS ever since I was a child first my doctor said it was growing pains, then when I got older they said it was anxiety attacks. I thought something was seriously wrong with me because when I tell people about it they don't have any idea what I was talking about. Then finally they came out with a name for it RLS. It is great I know what I have now but that is no comfort when they have no cure for it. Yes I take medicine for it and it was great (requip) then it got worse they increased my dose I am now at 5mg a day of requip and I also take klonopin and trazodone. It all worked great in the beginning now it is so severe I can't handle it. When I get an attack I move my legs a 100miles and hour and shake my arms till it hurts and it doesn't take away my need to move. Nobody understands what I go through. My attacks are now lasting days. I go sometimes without sleep for two or three days. YES ITS THAT BAD!!! I need help with this and fast it's getting out of control the older I get. I work out 5days a week for 2hrs. It doesn't help I have tried warm baths and it doesn't help me. I have tried so many different things and they don't work. I don't know what else to do. Why can't there be a surgical procedure that can take this away forever? If there is a doctor out there reading this please I will try anything just help me.

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Comment from: Pam, 55-64 Female (Patient) Published: June 20

I have had RLS for several years, but it seems to be getting worse as I get older. I used to just get it at night, now if I don't take my ropinirole, I am miserable.

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Restless Leg Syndrome - Medical Treatment Question: What medical treatment has been effective for your restless leg syndrome?
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Restless Legs Syndrome - Symptoms Question: What were the symptoms of your restless legs syndrome?

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