Patient Comments: Polymyalgia Rheumatica - Diagnosis

How was your polymyalgia rheumatica diagnosed?

Comment from: Female (Patient) Published: February 01

I have had PMR for about 3 years now. I am going to try and work with my immune system to make it stronger. My intention is to do it by diet. Eating food that strengthens m immune system. I am tired of the side effects of prednisone. I have nothing to lose and much more to gain.

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Comment from: 65-74 Female (Patient) Published: September 24

I was diagnosed with PMR about two years ago. I am a 67 year old female. It started with severe pain in my knees and the top part of my legs. I could hardly walk and everyone thought it to be some form of arthritis. It wasn't until my arms started to have excruciating pain that my doctor figured it to be PMR. A blood test was administered and my sed rate was elevated. I was put on 10 mg of Prednisone. I immediately felt relief. I felt like I was 30 all over again. I am now feeling stiff in the same part of my leg. I suspect it is PMR. I understand this thing can go away for some people. I am not that lucky, nor do I think this will happen. I believe that I will always be on some dose of Prednisone for short periods of time.

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Comment from: gustywind01, 55-64 Female (Patient) Published: February 28

The Doctor. I listed all my symptoms on paper before seeing a doctor. I was a new patient, having not seen a doctor for 9 years. I was always healthy. When the pain struck I tried home remedies for 4 months since I didn't have insurance. Because friends thought it might be Lyme disease I finally went to see a doctor without much hope I am afraid. He hadn't read half what I had written when he looked at me and said "I know exactly what you have: Poylmyalgia rheumatic!" Still focused on Lyme disease I was doubtful, having never heard of it, but I agreed to some lab work and to start a six day program of Predisone. It was unreal after just 2 pills in the morning and 2 this afternoon, no pain when I attempt to stand from a sitting position. Bless this man! My doctor was right on the spot for me. This is a first in my experience with doctors. After reading Patient Discussions on the web-site I am even more impressed at how quickly he diagnosed this. A+ DOC.

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Comment from: terry, 55-64 Male (Patient) Published: December 10

My polymyalgia rheumatic was diagnosed by my physician. The PMR began in march and lasted until November of same year. I slowly weaned myself off of Prednisone. That took courage as the symptoms of pain and withdrawal intensified for several weeks as I discontinued my medication. I swam almost every day as part of my recovery. I took a protocol of vitamins and minerals as part of an adrenal gland support. I'm sure it helped shorten my illness. I wake up with a lot of soreness and fatigue quickly but I am making jumps in my recovery.

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Comment from: rubytuesday, 55-64 Female (Patient) Published: August 12

I had a fever of unknown origin for 10 weeks before being diagnosed with polymyalgia rheumatic. The "specialist" for infectious disease thought I was too young (I am 57) and wouldn't start me on the prednisone. I finally went to a rheumatologist near my home who gave me 20 mg. of the steroid. Immediately, the fever disappeared and some of my energy is returning. I had every scan and blood test known to mankind with the same result - nothing is wrong with you. It is great to know that you are healthy but it was quite horrible to be stricken with a fever at any time of the day or night and wondering what is causing it. It is also very frustrating when your doctor (#1 in the field) can't figure it out and refuses to look outside the box. What a crazy illness!

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Comment from: Melanie, 65-74 Female (Patient) Published: July 22

I was very lucky and was diagnosed immediately. I had pain in my arms and thighs and thought it might be a worsening of my Fibromyalgia. Nope...It was polymyalgia rheumatic. My doctor sent me to the lab for bloodtests and he was called immediately with the results and within 2 hours I was diagnosed and on the prednisone...10 mg which I will reduce every month 1 mg. Hopefully this will be the end of it. I am expecting problems with the prednisone since I am decreasing it constantly....fingers crossed.

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Comment from: anxious, 65-74 Female (Patient) Published: July 07

I have been on prednisone for 7 years, reduced but then back on the tablets. I have GCA. Very healthy until neck ache, eventually told by doctor I was missing my husband who worked abroad. Finally, could not eat as my jaw wouldn't open wide enough and had to poke food into it. My husband flew home and took me to another doctor who diagnosed it immediately by taking a small portion for testing from the artery going to my eye. Still have terrible relapses with Polymyalgia Rheumatica where I can't get out of bed for the pain. Is there anything new out there to help me? I am now a very young 70 but was diagnosed at 63.

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Polymyalgia Rheumatica - Symptoms Question: The symptoms of polymyalgia rheumatica can vary greatly from patient to patient. What were your symptoms at the onset of your disease?
Polymyalgia Rheumatica - Treatment Question: What was the treatment for polymyalgia rheumatica in you or someone you know?

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