Patient Comments: Neuropathic Pain - Cause

What was the cause of your neuropathic pain?

Comment from: jgilson, 25-34 Female (Patient) Published: November 21

I have had severe pain mostly in lower back and legs for about 16 years. I have been to many doctors that have either told me "you are too young to have pain like this" or "you have spinal problems". And MRI after MRI has proven that I have multiple back problems, yet none of my doctors want to help my pain. All they want to do is give me a prescription that I could pretty much double the dose of the OTC version and send me on my way. I finally, After 16 agonizing Years of being in pain, that no one else understands, went to a neurosurgeon to discuss surgery, I had written down ALL of my symptoms for him to go over. He did his evaluation and immediately said, "I am going to refer you to a neurologist because the majority of your symptoms sound like neuropathy. I will find out tomorrow who I was referred to and hopefully will, finally, after 16 years, get some REAL answers and maybe, some REAL HELP!

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Comment from: Laura , 45-54 Female (Patient) Published: November 14

I have had chronic pain for over 4 years now. It started after I was diagnosed with breast cancer in both of my breasts. I had bilateral mastectomies with immediate reconstruction. I have burning pain in my chest wall. My surgeons and family practice physicians didn't know what to do except give me more narcotics and put me in physical therapy. I have been through 2 rounds of physical therapy, pain management clinic, breast reduction (I wanted him to take my implant out but he talked me into reducing first, I was never big just a small C cup) and injections by anesthesiologists. I even did a trial of the implanted spinal nerve stimulator, I really hated that. So now the good news is, I am seeing a doctor that practices alternative medicine. In the past two months she had reduced my fentanyl patch from 67mg to 25mg. We reduced only 12.5mg every two weeks. And reduced my Lortabs from 12 a day to 9. She has used acupuncture and other medicines called Vistaril (helps with opioid withdrawal), desipramine (antidepressant), clonodine (opioid withdrawal), Gralise (this was used instead of my Neurontin, used for nerve pain). I also have a muscle relaxant but rarely use it. It has been almost 2 months since I started working with her but I am so pleased.

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Comment from: wannabbetter, 35-44 Female (Patient) Published: January 30

Almost a year ago I had two flu types A and B. This lead to sepsis and D.I.C. God healed me and I have recently been released by most of my doctors. My swelling was so severe that I now have neuropathy in both my feet and hands - amputation was once a possibility. I have been in so much pain -burning, sharp "knife like “pain. I have tried neurontin, which helped but me gain weight. Now have a RX to try Topamax. Wish me luck!

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Comment from: Abby1980, 25-34 Female (Patient) Published: November 16

I have been in pain for about 10 years. Having had bad experiences with doctors telling me I'm depressed, etc, I just learned to live with it. But 4 years ago, it crossed the line and became unbearable. It sent me to the clinic, as I have no insurance. It was hard to describe this pain, until my neighbor who is a diabetic said her neuropathy feels like "breaking bones". I'm like aha, yea, that's it! Breaking bones mixed with electricity, on every inch of my body. As of now, not sure what I have 2 mri's of the brain and one of the spine, herniated disc and lesions, and "nonspecific" white matter lesions on the brain. I feel for all of you I know it's a living hell especially when people don't believe you.

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Comment from: kpain, 25-34 Female (Patient) Published: October 24

I had multiple reconstructive surgeries on my left ear to replace an eardrum I lost at the age of 4. All the skin grafts were taken from the same site. A minor infection a year ago triggered a pain response that has not gone away but only gotten worse. My ENT washed his hands of me when the ear infection went away. So far my insurance has only authorized narcotics for treatment and I am fighting for alternative treatments. My primary care doctor has been treating me and was the one to take time to do research to figure out what I had.

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Comment from: Katzeyz, 55-64 Female (Patient) Published: July 09

Severe lumbar spine stenosis, diabetes type 2 , accidental fall off a ladder onto a table that resulted in a piece of wood embedded in my calf, osteoarthritis and rheumatoid arthritis, fibromyalgia and sleep apnea - all of these are considered to be the cause of the severe pain (almost continuous) that I have in my left leg, both feet and lower back. Sometimes i have it in my arms and hands. my leg feels numb all of the time. I take Lyrica(pregbalin) and mobic and use lidocaine patches. I'm not allowed to take anything stronger than paracetamol because of my apnea. Sometimes, I'm unable to walk the pain is that bad. It also keeps me awake. Waiting to go to the pain clinic

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Neuropathic Pain - Symptoms Question: What are your neuropathic pain symptoms?
Neuropathic Pain - Treatment Question: What treatment did you have for your neuropathic pain?

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