Patient Comments: Neuropathic Pain - Cause

What was the cause of your neuropathic pain?

Comment from: mandm, 35-44 Female (Patient) Published: September 16

No one was able to figure out my neuropathic pain. Feeling like I am being bitten by fire ants, numbness, tingling all over, feeling like I am being stuck with pins, etc. At this point I am so disgusted I gave up. It stopped for about 7 months, but now it is back. So are the migraines and light sensitivity, fatigue, brain fog and intermittent muscle weakness. One neurologist stated it was not neurological - but it responded at least reasonably well at first to neurontin. No known cause...

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Comment from: andreeh, 25-34 Female (Patient) Published: September 08

I had no problems with my back or spine until I had my spinal for my C-section. I am a stay at home mom with two young kids and a farm to care for as my husband works away from home all week and I am not allowed to take any pain medications or use ultrasound therapy as I am also pregnant again. I don't know what to do anymore as I am in constant pain and have no help with the kids. I've been to every doctor I know of and no one can help me.

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Comment from: Ken, 35-44 Male (Patient) Published: June 21

Wow I felt like I was the only one with neuropathic pain. Within 8 months I went from bodybuilding, and working two jobs, to not even being able to walk some days. The pain is all over my joints, and it's insane. It's unreal from the top of my neck to the tips of my toes. I also have fibromyalgia, and arthritis all through my knees, hand, and back.

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Comment from: SJL, 55-64 Male (Patient) Published: April 26

My neuropathic pain in my face was caused by a mini-stroke. Five out of seven days a week I have this stabbing pain, mostly under my nose and around my chin. I've tried all different kinds of facial cleansers, oatmeal soap, aloe, neem and trying to freeze my face to relieve the pain. I read here that someone had a stroke and was going to see a specialist to treat the pain. What kind of specialist? My family doctor is at a loss for any kind of treatment, except when he prescribed me Prednisone for knee pain. That relieved the pain in my face, but I can't keep taking strong doses because it weakens the bones.

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Comment from: Marina, 45-54 Female (Patient) Published: February 01

I developed neuropathy after bacterial meningitis caused by a mass in by frontal lone. It took me a long time to get relief from the pain but Dr.'s were treating me like I was a druggie or something. It really ticked me off! Luckily I found a doctor who put me on the Butrans patch and I have no pain whatsoever! Better living through chemistry :-)

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Comment from: Waverunner, 55-64 Female (Patient) Published: November 22

I have had Reynaud's syndrome in my feet for many years. It has been getting progressively worse and now I have full-blown neuropathic symptoms. I went to a neurologist who said it is not neuropathy. If my feet start to get cold, I get severe cramps on my feet and legs. I also get shooting pains; my soles are ultra-tender, like walking on exposed nerves. I think the Reynaud's and the neuropathy symptoms are closely linked. I have good blood sugar, non-diabetic, am active.

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Comment from: Shellibee, 35-44 Female (Patient) Published: November 07

I got shingles in the region of the lower right side of my back which has now resulted in phn. My doctor and I are still trying to find the right pain management for me. Gabapetin made me loopy to the point of not being able to think, Cymbalta gave me uncontrollable kind of violent ticks. Currently on pain meds only until my next appointment with the neurologist. I keep hoping someday I will wake up feeling good not writhing in pain because my meds wore off.

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Neuropathic Pain - Symptoms Question: What are your neuropathic pain symptoms?
Neuropathic Pain - Treatment Question: What treatment did you have for your neuropathic pain?

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