Patient Comments: Multiple Sclerosis - Treatments

How do you manage your multiple sclerosis?

Comment from: Tina, 45-54 Female (Patient) Published: April 12

I was diagnosed with MS in 2005 at the age of 44. I woke up one morning with numbness in my lower back and right leg. This was on a Thursday. By the weekend I was totally numb from the waist down. I couldn't feel my feet touching the floor. I saw my doctor on Monday and had an MRI to see if I had a disc problem. It was negative and she told me she feared MS. I was sent to a neurologist, had two more MRIs, and was told that night that I have four lesions on my spine – MS. I did the steroid treatments for three days, got my feeling back, then went numb from the waist up. I received more steroid treatments. My neurologist and I decided to go with the Rebif therapy. I have been taking shots since 2005 and nobody would ever know that I have MS. I lead a totally normal life. My doctor started me on medication immediately and I believe that is why my symptoms are gone. My lesions have even shrunk.

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Comment from: apprehensive, 45-54 Female (Patient) Published: September 07

I was diagnosed with MS in 2004 after being mis-diagnosed with Lupus 10 years prior. It got so bad that I was in a wheel chair. I lost control of my bladder and bowels. I took 2 years of Betaseron without having any improvements. I went through three total treatments of CAMPATH, which is experimental, but soon to be approved for use for MS. It turned me around. I am walking without assistance from anything, have been walking 4 miles a day, I've had a decreased number of attacks/flair-ups, and my fatigue is way down. It's been 3 years since my last dose and my last MRI showed two new very small lesions from the previous year. I believe in this drug! It turned my life around. I pray that this drug will be approved soon so people will have another choice to treating their MS. I can't begin to sing its praises. It is the most near normal I have felt in many years. Now it is wearing off and symptoms are reappearing and this medication is off the market and it can't be used until it is approved. I am very scared of what I will be facing next.

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Comment from: Warrior Pilot, 25-34 Male (Patient) Published: November 16

I was diagnosed with RLS (restless legs) during my military retirement in 2008. Symptoms were legs twitching when going to sleep. Early 2011, I was sent to a neurologist who diagnosed me with RLS and PLMS (periodic limb movement) because it was happening when sitting for long periods (30+ minutes). Eventually more lower body numbness, tingling, pain and balance issues required an MRI and spinal tap. It concluded MS in OCT 2011. I have normal days if I get a lot of rest but stress and lack of sleep trigger all of the above symptoms. Klonopin works great at night but makes me drowsy in the day. I'm seeing that all MS patients have very different symptoms. Positive attitude really does help so far.

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Comment from: 25-34 Female Published: August 26

My daughter was diagnosed with MS at 19 but had shingles at the age of 11, glandular fever at the age of 14, and optic neuritis at the age 16. She has taken copaxone every day for the last two years. She has a hectic working life and copes well with her disease by being positive, having healing sessions, meditation, and tries to keep stress to a minimum. We have noticed that she has less mood swings and looks healthier for it.

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Comment from: mbardi, 35-44 Female (Caregiver) Published: January 31

I have a Father-in-law with MS he's 52 years of age has had MS since 06. He was on tysabri, had a relapse last week. The doctors are saying MRI is good, but he has UTI, then it turned into you need surgery. My father-in-law isn't a pleasant man, but he's a human being. He tells us one thing and tells the doctors what they want to hear, he is now in rehab to get strength back into left side of body, has no function of the left side. Doctors won't talk to us. We are scared to death because he has it set up that way. That is very hard to swallow when you are the one taking care of him. God Bless everyone who has MS, it's a horrible thing to have and I wish they can find a cure.

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Comment from: teeni, 35-44 Female (Patient) Published: August 08

I'm so glad to find a way to learn about other people's battle with MS. I was 38 when my first symptoms appeared. I worked really long hours at the business i was supposed to buy, needless to say that never happened. But it is so true what you said about early treatment is so important I had to wait 2 years for any treatment and the MS is way ahead of most at this age so anyone who reads this please do everything you can to get early treatment.

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Patient Comments

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Multiple Sclerosis - Symptoms Question: The symptoms of multiple sclerosis can vary greatly from patient to patient. What were your symptoms at the onset of your disease?
Multiple Sclerosis - Diagnosis Question: How many doctors did you go to before you received a multiple sclerosis diagnosis?
Multiple Sclerosis - Causes Question: Were you, a friend, or relative diagnosed with MS? What do you think the cause might be?
Multiple Sclerosis - Type Question: What type of multiple sclerosis do you have? How do you cope with the symptoms and your condition?

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