Patient Comments: Multiple Sclerosis - Treatments

How do you manage your multiple sclerosis?

Comment from: Servant, 35-44 Female (Patient) Published: June 09

Hi All, Apparently I have had MS for many years, but it was never truly diagnosed until recently. In my early 20's I was symptomatic. (Sudden inflammation that caused me to not be able to move limbs, skin tingling, weakness in my extremities) The one thing that i am able to say about this process is that I have been living with MS for many years and I do mean living. I enjoy all of the things that I always did but the one thing I am certain of is that you must be able to take the good with the bad and let the worry roll off of you because it is the worry that will keep you sick and the desire to keep living as you live daily that will keep you well. One day at a time we can and do survive this disease. Be blessed all of you living with this.

Was this comment helpful?Yes
Comment from: NOENA, 19-24 Female (Patient) Published: July 24

You have to change your lifestyle with multiple sclerosis. First from school or from work, as soon as you get back home, just don't take a shower, take note you're tired, you have to stop and rest for about two hours, let your body rest. Next the myelin sheet or that covering on the neurons /roots is being deteriorated, basically your deficient on Vitamin b12. Don't abuse your body on work. Rest! MS is just a stress from your own lifestyle. I have multiple sclerosis, but I'm moving on. I take USANA food supplements with Vitamin b12.

Was this comment helpful?Yes
Comment from: Kristi b, 55-64 Female (Patient) Published: April 12

My multiple sclerosis doctor has not seen this, so help me out. 27 years ago I was diagnosed with MS due to an vision issue and tingling. This lasted only weeks...nothing for all these years and then over the past 13 months I have had increased facial nerve problems...eye lid doesn't close, facial muscles not working on the left side, can't smile, unable to raise left eye brow. I look like I had a stroke!

Was this comment helpful?Yes
Comment from: alw0502, 45-54 Female (Patient) Published: March 03

I was diagnosed with multiple sclerosis in December 2009. The only symptoms that I have are tingling feet and hot/cold sensations on my legs. I still exercise daily and do not have issues with heat or fatigue. I have not started any type of DMDs (medications). I have only had one relapse that required steriods since my diagnosis.

Was this comment helpful?Yes
Comment from: honeygu, 75 or over Female (Patient) Published: February 28

My Multiple Sclerosis symptoms are: pain that started from the side of my knee to my foot. X-Ray showed a disc leaning on a nerve. I was in therapy for 3 1/2 months before my therapist discovered foot drop (or drop foot). I called my primary and requested a MRI. Primary told me I do not have MS, but when I asked how he can be sure, he dismisses my symptoms, which are blurred vision, drop foot, weakness in leg. I also seem to have some memory issues. I realize I am elderly, but all of these symptoms occurred following the incident. I am still having symptoms (except no pain) one year later.

Was this comment helpful?Yes
Comment from: Granville, 65-74 Male (Patient) Published: February 24

I am current on the usual suspects for multiple sclerosis: muscle relaxants, SSRIs, pain medications, Porvigil, Ditropan, and Gabapintin. For 5 years I was on daily injections of Copaxone. I changed physicians and was taken off Copaxone. I haven't felt the same since.

Was this comment helpful?Yes
Comment from: sweetpea62308, 45-54 Female (Patient) Published: February 04

In 2006 I was diagnosed with MS. I had 4 lesions, I underwent the 4 days of solumedral. I had EMG's done. Never did the Dr. order me MS meds. I saw 3 doctors about this. Now after 4 years they tell me I do not have it. I am so frustrated that I have no trust for the medical profession. I worked in the medical profession for over 30 years and I am treated like a second class patient.

Was this comment helpful?Yes
Comment from: Megan, 45-54 Female (Patient) Published: October 29

The best thing you can do for yourself is have a good attitude. Even when you feel you cannot. My entire left side melts when stress is apparent. I was diagnosed 22 years ago. You might have MS, but don't let it have you.

Was this comment helpful?Yes

Patient Comments

Viewers share their comments

Multiple Sclerosis - Symptoms Question: The symptoms of multiple sclerosis can vary greatly from patient to patient. What were your symptoms at the onset of your disease?
Multiple Sclerosis - Diagnosis Question: How many doctors did you go to before you received a multiple sclerosis diagnosis?
Multiple Sclerosis - Causes Question: Were you, a friend, or relative diagnosed with MS? What do you think the cause might be?
Multiple Sclerosis - Type Question: What type of multiple sclerosis do you have? How do you cope with the symptoms and your condition?

Patient Comments are not a substitute for professional medical advice, diagnosis, or treatment. Never delay or disregard seeking professional medical advice from your physician or other qualified health provider because of something you have read on MedicineNet. The opinions expressed in the comments section are of the author and the author alone. MedicineNet does not endorse any specific product, service or treatment.

Alert If you think you have a medical emergency, call your doctor or 911 immediately.


Report Problems to the Food and Drug Administration

You are encouraged to report negative side effects of prescription drugs to the FDA. Visit the FDA MedWatch website or call 1-800-FDA-1088.


STAY INFORMED

Get the Latest health and medical information delivered direct to your inbox!