Patient Comments: Multiple Sclerosis - Type

What type of multiple sclerosis do you have? How do you cope with the symptoms and your condition?

Comment from: amartin7199, 45-54 Female (Patient) Published: July 16

I have primary progressive MS, and I'm 46 years old. I was diagnosed in 2005. I tried a lot of different medications, and now I'm taking Gilenya. I have 49 lesions on my brain. I also have a pain pump, which is a Godsend, to help deal with the pain. I also suffer a lot of fatigue, cramping, spasms in my neck, my hands, feet, calves, and thighs, and I'll spasm on either the right or the left side of my upper back. I have balance issues, memory problems, and headaches. I take it one day at a time. I pray for Christ's strength to get me through the day. That is the only way I can get through this. Christ gives me courage and faith.

Was this comment helpful?Yes
Comment from: Emma, 45-54 Female (Caregiver) Published: June 19

My multiple sclerosis (MS) pain is so bad that the doctor prescribed fentanyl patches and oxycodone. They are the only things that help with the pain.

Was this comment helpful?Yes
Comment from: Karenwhite911, 55-64 Female (Patient) Published: May 07

I was diagnosed with progressive MS in 2004. I had a flare-up in 2010 that caused my left arms to stop functioning. I've tried therapy, but it is not helping. I am seeking something to help regain my life to be able to do things for myself. It is frustrating when it feels like nobody is trying to help you find some relief.

Was this comment helpful?Yes

Patient Comments

Viewers share their comments

Multiple Sclerosis - Symptoms Question: The symptoms of multiple sclerosis can vary greatly from patient to patient. What were your symptoms at the onset of your disease?
Multiple Sclerosis - Treatments Question: How do you manage your multiple sclerosis?
Multiple Sclerosis - Diagnosis Question: How many doctors did you go to before you received a multiple sclerosis diagnosis?
Multiple Sclerosis - Causes Question: Were you, a friend, or relative diagnosed with MS? What do you think the cause might be?

Patient Comments are not a substitute for professional medical advice, diagnosis, or treatment. Never delay or disregard seeking professional medical advice from your physician or other qualified health provider because of something you have read on MedicineNet. The opinions expressed in the comments section are of the author and the author alone. MedicineNet does not endorse any specific product, service or treatment.

Alert If you think you have a medical emergency, call your doctor or 911 immediately.


Report Problems to the Food and Drug Administration

You are encouraged to report negative side effects of prescription drugs to the FDA. Visit the FDA MedWatch website or call 1-800-FDA-1088.


STAY INFORMED

Get the Latest health and medical information delivered direct to your inbox!