Patient Comments: Multiple Sclerosis - Symptoms

The symptoms of multiple sclerosis can vary greatly from patient to patient. What were your symptoms at the onset of your disease?

Comment from: Sunny, 55-64 Female (Patient) Published: May 30

I was diagnosed with multiple sclerosis (MS) in 1994 at the age of 39; however, I had the first symptoms one year prior. My vision was blurred for three months. I had closed my fingers in my front door without realizing it. I knew then something was wrong. I called my primary doctor who examined me and then sent me to the hospital. An MRI was performed and I was diagnosed with MS. I have been on Avonex, Betaseron, Copaxone and now Rebif.

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Comment from: MAPLE, 55-64 Female (Patient) Published: April 29

I was diagnosed in 1998, however, my physical trainer in 1992 said "you probably have multiple sclerosis." In 1997 I started to fall if I sprinted, I fell a lot. In 1998 the numbness and stuff started in my ankles; I had dismissed the weirdness in my feet and toes up to then. The practitioner in the office discovered in right then and there and off I went to specialists, who in my case, tested, diagnosed and gave prognosis, all the same day. No doubt I was afraid and didn"t know what to do. I was always very active physically and had a thriving business, which the symptoms were restricting me from effective results, so I had to stop and obtain disability when I realized this is a permanent condition, no medicine was going to fix. I then was prescribed Avonex, which resulted in 1st seizure of my life. Then I was switched to beta asarone, which was hell every other day, then to Copaxone, which I took until recently as I am no relapsing-remitting, just a slow progression of more intense symptoms. I had to stop driving, which was the final straw. I am a very independent and hands on person, in the beginning, I had to give up playing golf, my passion for years, and so, life goes on. There are people with lot more serious conditions than this, and honestly, I said thank goodness, that"s all it is when I was diagnosed. So when you start feeling sorry for yourself, think about the thousands of people suffering more than you are and be thankful, that"s how I see it; and I'll keep going until I totally cannot move by myself, good luck to all those blessed with MS, it could be a lot worse.

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Comment from: Kathy, 55-64 Female (Patient) Published: April 01

I knew that in my early 30"s I had multiple sclerosis (MS). It was in the 80s and for nearly 10 years I heard all kinds of garbage from doctors. My first cousin had it and I knew her symptoms. I had tingling in my hands and feet and then nerve throbbing. I took two chemotherapy level treatments of an old steroid and developed diabetes. I tried one of the new drugs and it didn"t work. But since 1997 I have been on Copaxone. In the last year the numbness is more severe and symptoms are increasing but I keep hoping and keep moving. I do not wish MS on anyone else but it has made me a better person. I am grateful that I can still walk and drive.

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Comment from: Melissa, 25-34 Female (Patient) Published: March 13

My symptoms started when I was 23. I had tingling in my right foot and it felt very heavy. I had a hard time walking. I also had some dizziness. Doctors didn't know what it was, so they diagnosed me with possible mild Guillain-Barre syndrome. Then 2 years later, the same thing happened, only worse. I was referred to a neurologist, had an MRI and was diagnosed with relapsing remitting multiple sclerosis (RR-MS).

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Comment from: catwoman, 45-54 Female (Patient) Published: December 05

I was going to a gym and had a personal trainer, he told me I appeared to be dragging my right foot. This scared me, thought I had had a stroke, so I went to my primary physician and he ordered an MRI. He called me and told me I had MS (multiple sclerosis) and he wanted me to see a neurologist. I went to the neurologist, who examined me and did not believe I had MS, so he ordered the spinal tap and lots of blood work. Then he said that yes, I do have MS.

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Comment from: mydogrudy, 55-64 Female (Patient) Published: November 20

I was diagnosed with RR MS (relapsing-remitting multiple sclerosis) back in 2010 and was taking Avonex Injections for a year. Then I had MRI of brain taken by neurologist, who said there were MS lesions. I had various symptoms of Imbalance, HA (hypertonia arterialis), leg numbness, difficulty walking, and LP (lumbar puncture) with no real high abnormal values. I had high basic protein, WBC, but no bands or IGG. My MRI showed no MS. So I got a second opinion and was told no MS. I was so confused. I still have horrible problems walking, dizziness, imbalance, and weakness in both legs, visual, and horrible muscle spasms where my foot lifts off floor. My aunt was diagnosed at age 72. I do have lesions, but told later they were not related. I am confused!

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Multiple Sclerosis - Treatments Question: How do you manage your multiple sclerosis?
Multiple Sclerosis - Diagnosis Question: How many doctors did you go to before you received a multiple sclerosis diagnosis?
Multiple Sclerosis - Causes Question: Were you, a friend, or relative diagnosed with MS? What do you think the cause might be?
Multiple Sclerosis - Type Question: What type of multiple sclerosis do you have? How do you cope with the symptoms and your condition?

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