Patient Comments: Multiple Sclerosis - Symptoms

The symptoms of multiple sclerosis can vary greatly from patient to patient. What were your symptoms at the onset of your disease?

Comment from:, 45-54 Female (Patient) Published: March 12

I was diagnosed 7 months ago after optic neuritis . Treated for 3 days solumedrol, 1000 Mg After a brain scan , lumbar puncture, MRI ,neck and spine scan I had a diagnosis in 34 days! I was 53 years old. Have Always had problems with heat ,would sweat almost constantly to the point of dehydration. Only my head and neck sweat badly. Left leg and foot burning, tingling,jumping, leg drag that gets worse with fatigue .Memory problems, skin problems.Never got full vision back in left just mostly looks silver like heat burning on blacktop. Taking Gilenya.

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Comment from: Denise, 45-54 Female (Patient) Published: March 05

I was diagnosed in 1982 after losing the central vision in my right eye. My lousy "co-ordination" throughout my childhood and a "pinched nerve" at age 16 in my right arm was attributed to MS.

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Comment from: ToniM56, 45-54 Female (Patient) Published: September 02

I thought I had an ongoing inner ear infection, and I found out I had relapse/remitting multiple sclerosis.

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Comment from: Hobojo, 55-64 Male (Patient) Published: September 02

I was 11 years old when I was diagnosed with multiple sclerosis. The pain was so great in my legs and feet. Like others, MS in kids was not heard of when I was diagnosed, although a doctor did tell me it was caused by my brain. I've had pain off and on since 1961. I've also had very little help managing the pain.

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Comment from: Mary, 45-54 Female (Patient) Published: August 12

My multiple sclerosis symptoms included double vision, lasting about 10 minutes. I would trip easily. (I did not realize these were symptoms of anything neurological until after my diagnosis). My main symptom was numbness in my left hand and my thumb and two fingers on my right hand. I was examined for carpal tunnel syndrome, but when that failed, an MRI was recommended. That's how they found my multiple sclerosis.

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Published: July 21

I experienced numbness from the waist down and thought I had a pinched nerve. I ignored the strange sensation for a month. I didn't go see a doctor about it until I fell down at the store and couldn't get up again without hanging onto the cart! Needless to say, I was diagnosed with MS within 3 months of seeing my primary physician.

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Published: July 08

I have just learned that I have MS. It started with my left side of my bottom lip going numb after a phone call that upset me. The next day it was gone, then that night, just watching TV, the left side of my face went numb. This went on for about four days and then I saw the doctor. He did all the tests that showed I'm at the early stages of MS.

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Published: June 30

I don't have MS but I lost my sister in November from the complications of the disease. She fought a hard fight and was able to live most of the 27 years she suffered a different but good life, she kept a positive attitude. You would never know what her demise might be. And she lived way over the expectancy the doctors had given us. I do believe support and love is a major part of giving these patients the will to fight. Although most of her family stayed strong in our commitment to stand by her side, it seemed most of her friends and lots of family forgot about her and could not deal with it, I always figured if she could, I could. The first symptoms she had was tingling in her hands and legs, dropping things and falling. She first walked with a cane, a walker, for a long while she could drive with hand controls and transfer with her wooden board. Later when the paralysis got worse so did the muscle spasms. She had many remissions but the last 6 years she seemed to spiral downward. She was the strongest most determined person I will ever know. And I hope I can keep her memory alive. And some day be able to find away to keep anyone else from being told they have this disease.

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Patient Comments

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Multiple Sclerosis - Treatments Question: How do you manage your multiple sclerosis?
Multiple Sclerosis - Diagnosis Question: How many doctors did you go to before you received a multiple sclerosis diagnosis?
Multiple Sclerosis - Causes Question: Were you, a friend, or relative diagnosed with MS? What do you think the cause might be?
Multiple Sclerosis - Type Question: What type of multiple sclerosis do you have? How do you cope with the symptoms and your condition?

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