Patient Comments: Multiple Sclerosis - Symptoms

The symptoms of multiple sclerosis can vary greatly from patient to patient. What were your symptoms at the onset of your disease?

Comment from: Mary, 45-54 Female (Patient) Published: August 12

My multiple sclerosis symptoms included double vision, lasting about 10 minutes. I would trip easily. (I did not realize these were symptoms of anything neurological until after my diagnosis). My main symptom was numbness in my left hand and my thumb and two fingers on my right hand. I was examined for carpal tunnel syndrome, but when that failed, an MRI was recommended. That's how they found my multiple sclerosis.

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Published: July 21

I experienced numbness from the waist down and thought I had a pinched nerve. I ignored the strange sensation for a month. I didn't go see a doctor about it until I fell down at the store and couldn't get up again without hanging onto the cart! Needless to say, I was diagnosed with MS within 3 months of seeing my primary physician.

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Published: July 08

I have just learned that I have MS. It started with my left side of my bottom lip going numb after a phone call that upset me. The next day it was gone, then that night, just watching TV, the left side of my face went numb. This went on for about four days and then I saw the doctor. He did all the tests that showed I'm at the early stages of MS.

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Published: June 30

I don't have MS but I lost my sister in November from the complications of the disease. She fought a hard fight and was able to live most of the 27 years she suffered a different but good life, she kept a positive attitude. You would never know what her demise might be. And she lived way over the expectancy the doctors had given us. I do believe support and love is a major part of giving these patients the will to fight. Although most of her family stayed strong in our commitment to stand by her side, it seemed most of her friends and lots of family forgot about her and could not deal with it, I always figured if she could, I could. The first symptoms she had was tingling in her hands and legs, dropping things and falling. She first walked with a cane, a walker, for a long while she could drive with hand controls and transfer with her wooden board. Later when the paralysis got worse so did the muscle spasms. She had many remissions but the last 6 years she seemed to spiral downward. She was the strongest most determined person I will ever know. And I hope I can keep her memory alive. And some day be able to find away to keep anyone else from being told they have this disease.

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Published: June 30

The first noticeable thing was hip trouble (left side) it was 'clunking' very loudly and painful in certain positions (tightening of tendons) after came the writing, it started to become harder and harder to hold a pen and my writing became more and more 'childish' few months afterward my foot got harder to lift off the floor and all the while I'd experience prickly heat sensation in my lower legs and on the inner part of my thighs. Eventually I had foot drop and my left hand is now permanently clawed with the whole left arm sitting against my stomach. I lift my left leg by the hip (on the tiptoes of my right foot) with every step. If you think there is ever anything wrong. DON'T hesitate to be checked over as I made that mistake and will forever regret it. I'm 21 and the disease got me at 15yrs old. I have 1 child now so all hope is not lost, you will cope if you suffer this slow crippling disease, just keep a positive mind or it will bring you further down.

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Published: June 26

My first onset of MS was the optic neuritis 6 years ago, I was 21. It only lasted 3 days. I went to 4 eye doctors, and got tested for diabetes and glaucoma. They all said my eyes were fine, and actually insisted I smoked too much weed and drank too much (at the time I agreed), and that I just needed better glasses for near sightedness, but yeah ok shows how stupid they are. Once it went away, I forgot about it for a long time. 6 years later, (last month) after being severely depressed and fatigued that whole time, the optic neuritis came back again. Finally they diagnosed me with MS. I just had a spinal tap last week, and still haven't recovered from that either, as I have SEVEREEEE headaches and nausea. Now my right arm is almost useless, it's completely numb and I also need rotator cuff surgery. Just yesterday, my other hand got slightly numb. The doctors refuse to give me anymore steroids as I'm still having an attack

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Published: June 24

I was experiencing extreme fatigue - almost falling asleep as I drove to work, then almost nodding off sitting in front of my computer. I also had sharp nerve pains in both of my hands and once in a while down my shins and knees. Funny, I have numbness now on both hands where the pains were. Also, I sometimes (when really tired) experience numbness on my cheeks - once it even spread to my throat and upper chest. (That freaked me out!) I was diagnosed just over two years ago. (Brain MRI confirmation - four times!)

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Patient Comments

Viewers share their comments

Multiple Sclerosis - Treatments Question: How do you manage your multiple sclerosis?
Multiple Sclerosis - Diagnosis Question: How many doctors did you go to before you received a multiple sclerosis diagnosis?
Multiple Sclerosis - Causes Question: Were you, a friend, or relative diagnosed with MS? What do you think the cause might be?
Multiple Sclerosis - Type Question: What type of multiple sclerosis do you have? How do you cope with the symptoms and your condition?

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