Patient Comments: Multiple Sclerosis - Symptoms

The symptoms of multiple sclerosis can vary greatly from patient to patient. What were your symptoms at the onset of your disease?

Published: July 29

At age 39 years I started to get a very itchy left arm for weeks, then woke up one morning and found my legs very heavy, and tired all the time. I had walking difficulties and tried to carry on with life, but it got the better of me. After many tests etc I was diagnosed with MS. I have tried many drugs, but I don't take betaferones. I continue to live my life on a day to day bases as MS is unpredictable but I do try.

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Published: July 28

The onset of my MS came gradually over a 4 month period of time. It started with the feeling that I was walking on marbles. From there it progressed to numbness in my toes and progressed to my feet. I thought I had a lower back problem and went to see a chiropractor. I was treated by this doctor for 3 months. The treatments included heat and spinal manipulation. I finally figured out that I was feeling worse when I left her office. I contacted a friend of mine who is an MD. He suggested based on my symptoms that I see a neurologist. The numbness had continued to move up my legs and I also began having shocks through my body when I bent my head forward. The neurologist hospitalized me the same day of my office visit and began all of the tests required to diagnose MS. This included full spinal and brain MRI and a spinal tap. Needless to say, all of the tests indicated MS. This was strange. I have always been an active person and had completed 2 half marathons the two prior years before being diagnosed. I believe mine is progressive since I never go into remission. I am treated with Tysabri which is not approved for progressive; however, it has helped me since I have no additional active lesions after one year.

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Comment from: renehi59, 45-54 Female (Patient) Published: August 20

My first symptom was an electrical shock from the right side of my leg going straight up to my arm.

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Comment from: msgoetz, 55-64 Female (Patient) Published: August 08

It began with headaches, joint pains more like numbness pins and needle feelings and prickly sensation. I also had a lupus diagnosis. It was my rheumatologist that said something else was going on, lupus was not my major issue. My symptoms became worse and I loss more and more feeling.

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Comment from: Duchess, 65-74 Female (Patient) Published: July 17

I was feeling very fatigued and passing out fairly frequently. I felt considerable weakness in my joints, and loss of appetite. I have lost weight over the last few years. I also am very anxious a lot of the time. As the years go by I have had numerous falls and now suffer with peripheral neuropathy. I also have chronic pain in my joints.

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Comment from: thatagirl, 45-54 Female Published: May 20

Optic neuritis was my first symptom. I was working and I slammed my hand in the sliding side door of my work van; it shut on my hand. I went to the hospital because it was really bleeding. I received a tetanus shot and stiches. The next day, I felt like a train hit me. I felt dizzy, had fatigue, and major vision problems. I could not even see out of my right eye (the optic neuritis). I still don't know exactly what caused my flare of symptoms – the sudden trauma to my hand or the tetanus shot? I now will not get another tetanus shot! Too scary! Sudden trauma to the body was a huge factor. I hope my story helps someone.

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Comment from: Coppertop, 45-54 Female (Patient) Published: April 17

I was just diagnosed at 46 years of age. My twin sister was diagnosed at 29 and my father when he was 29. At Christmas, I fell down the stairs at work and separated my shoulder. While going through therapy, my arm went numb and they sent me for an MRI to rule out a pinched nerve. I got the call less than an hour later that I had active lesions on my cervical spine and inactive ones on my brain. I'm having terrible pain issues after two rounds of IV steroids. No relief. My sister and Dad have very different courses than me. Right now, I'm waiting to start on Copaxone.

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Multiple Sclerosis - Treatments Question: How do you manage your multiple sclerosis?
Multiple Sclerosis - Diagnosis Question: How many doctors did you go to before you received a multiple sclerosis diagnosis?
Multiple Sclerosis - Causes Question: Were you, a friend, or relative diagnosed with MS? What do you think the cause might be?
Multiple Sclerosis - Type Question: What type of multiple sclerosis do you have? How do you cope with the symptoms and your condition?

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