Patient Comments: Lupus - Treatments

What treatments have been effective for your lupus?

Comment from: Victory, 45-54 Female (Patient) Published: August 18

I am a 52 yr old female who was diagnosed with (SLE) Lupus 6 months ago. I was constantly in pain, hips, elbows, fingers ankles and groin and had fevers, headaches and chills and my hair was falling out in clumps. I became very depressed. I went to several doctors who just gave me antibiotics and antidepressants. I finally searched my symptoms which guided me towards Lupus. I asked my doctor if I could possibly have Lupus...a blood test for ANA antigens was done and I basically had diagnosed myself. I am taking hydroxychloroquine twice a day for treatment. I tried, but cannot take the anti-inflammatory drugs. I still try to live a normal and productive life.

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Comment from: Dee, 65-74 Female (Patient) Published: October 08

Low dose naltrexone for lupus has given me my life back.

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Comment from: susiem, 55-64 Female (Patient) Published: April 30

Prednisone and plaquenil have been effective treatments for me.

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Comment from: Marietjie, 55-64 Female (Patient) Published: January 22

I was diagnosted with lupus 6 years ago. I only use Panamor SR 100 for the inflamation. My doctor suggested Immunadue for the immune system and I also have received scio treatment for 3 years now. This has helped me a lot and I am living a normal life. I have lupus flairs from time to time. When I do I double the dose of the medicine and I am fine again. I also use 5HTP for the depression that's caused by lupus and when I feel 'off' I also double the dose. I honestly believe that the scio treatment keeps me so healthy. When my knee or shoulder joints hurt I rub them with Flexadrin, it brings almost immediate relief.

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Comment from: Joc633, 45-54 Female (Patient) Published: November 27

I have found that far infrared therapy is a godsend to me. With doing therapy every day I have been basically symptom free for years, up until this year. Since my flare ups have increased because of stress and my job, the only thing that gives me relief is far infrared. I prefer to stay away from meds because of possible side effects.

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Comment from: nana, 45-54 Female (Patient) Published: June 11

I'm a 53-year-old woman diagnosed with lupus at age 24 after the birth of my first son. I've been on and off Plaquenil several times. I take Prednisone for pleurisy. I still have some kind of pain all of the time although now doctors say it's more likely fibromyalgia.

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Comment from: Lily, 65-74 Female (Patient) Published: June 08

I've had chronic SLE Sjogren's overlap for decades. Best treatment to date has been four infusion protocol of rituximab / 250mg solumedrol which provides remission for about a year.

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Comment from: daisykm, 55-64 Female (Patient) Published: April 30

I had my first attack four years ago and was covered from neck down in hot blistering rash. I was wrongly diagnosed as chickenpox! I was admitted to hospital and then told it was Stevens-Johnson syndrome and I was sent home with no cure or medication. I had fever and extreme mouth ulcers and fatigue. I had a relapse last year and was admitted again with similar symptoms, but this time I acted faster. I was diagnosed with drug induced Lupus, which was caused by an allergic reaction to my high blood pressure medicine, and was referred to a clinical immunologist and allergist who started me on Plaquenil and prednisone.

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Patient Comments

Viewers share their comments

Lupus - Symptoms Question: The symptoms of lupus can vary greatly from patient to patient. What were your symptoms at the onset of your disease?
Lupus - Experience Question: Please describe your experience with lupus.
Lupus (Systemic Lupus) - Prevention Question: What prevention measures do you use to avoid getting lupus flares?

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