Patient Comments: Lupus - Treatments

What treatments have been effective for your lupus?

Comment from: Mary, 55-64 Female (Patient) Published: February 14

I had a stroke when I was 38 years old, then through the years I had rash, swollen glands, and loss of weight. Finally in 1995 with diagnosis of Reynauld's syndrome and my doctors found that I did have systemic lupus and also had liver and lung problems. Now they say I have mostly fibromyalgia, and I still am so tired, I ache, and I feel like I have a low grade fever.

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Comment from: momberose, 35-44 Female (Patient) Published: July 06

Have had Lupus since I was 15 started with the joint pain and joint swelling. I have gone through the requisite barrage of anti-inflamatories. I am unfortuantely allergic to Plaquinil. I also tried imuran without much relief. Mostly I just deal with it. Recently I have started taking Lyrica. It helps with some of the more generalized pain. It tires you out and can make you a little zoned out sometimes but I have felt better on that for he last month than anything else. It also helps with my back pain.

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Comment from: vickypurrfect, 25-34 Female (Patient) Published: May 20

I have S.L.E lupus, and I'm 28 years old. I was diagnosed when I was 15. I was put on predinisolone when I was younger, but reacted bad to it. I'm not on any medication at the minute but I have been getting pain in my heart so bad that I have to take very shallow breathes as the pain is so bad. I then feel very light headed because of this.

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Comment from: Jane, 65-74 (Patient) Published: February 15

I have had Systemic Lupus Erythematosus for 35 years. Started with a rash and joint pain. It took several years before I was diagnosed. After a lot of searching,I found a doctor who understood the disease and me. I sincerely feel that this is the clue for proper treatment. His care averted serious kidney problems and pain, physical and emotional. So, I urge people to keep searching and not give up. There is help out there.

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Patient Comments

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Lupus - Symptoms Question: The symptoms of lupus can vary greatly from patient to patient. What were your symptoms at the onset of your disease?
Lupus - Experience Question: Please describe your experience with lupus.
Lupus (Systemic Lupus) - Prevention Question: What prevention measures do you use to avoid getting lupus flares?

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