Patient Comments: Lupus - Symptoms

The symptoms of lupus can vary greatly from patient to patient. What were your symptoms at the onset of your disease?

Comment from: trishaun, 35-44 Female (Patient) Published: November 25

I was diagnosed with lupus about 2 years ago after about 2 years of all sort of testing. It is very difficult to diagnose. I have suffered from hair loss, joint pain and swelling, and skin rashes. This has caused me great depression although I have a wonderful husband who is extremely supportive. I often wonder if anyone else knows what I am going thru. I hate to see there are others who share in my suffering. God bless you all!

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Comment from: 25-34 Female (Patient) Published: November 17

I was diagnosed with lupus at 30. I have joint pain at the knee and my right middle finger swelled up and would not straighten. Subsequently, all of my fingers swelled and were very painful. My eyes were bloodshot most of the time. I was diagnosed with arthritis initially. When it was full-blown, I had a fever every morning, and I also had rashes on my face. Now, I am suffering from hair loss and lethargy post-treatment, and I'm on immunosuppressants.

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Comment from: 45-54 Female (Patient) Published: November 06

My symptoms of lupus were joint pain, severe headaches after sun exposure, nosebleeds and rashes.

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Comment from: cornaig3, 75 or over Female (Patient) Published: October 23

The only symptoms I have are related to skin --- butterfly rash, swollen face and lips, open sores, skin sheeting off, bleeding arms etc. Sores were not itchy, but wounds on arms were very painful. Large amount of prednisone dramatically ended peeling and swelling.

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Comment from: 35-44 Female (Patient) Published: October 09

My symptoms at onset were arthritis and a bad rash in the butterfly area. I also lost a lot of the hair on my head, and the remaining part of it became thin and weak. I live in Denmark and I am a teacher. I was diagnosed with SLE in 1993, at the age of 23.

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Comment from: 4727, 45-54 Female (Patient) Published: February 19

Joint pain - ankle very bad (previously sprained) and had pain and difficulty walking; first diagnosed by orthopedic surgeon as plantar fasciitis. Then had extreme shoulder and back pain, and a swollen middle finger that persists. Finally, very sick with a cold and suffered extreme fatigue. Internist ordered ANA test and positive result. Many more tests to eliminate possibility of other problems (gout, diabetes, thyroid), but as symptoms persisted and worsened, lupus dx stuck and began medication, plaquenil after seeing rheumatologist for first time.

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Comment from: cricket252, 65-74 Female (Patient) Published: January 15

I have sore and swollen hands, fingers and wrists, sore arm muscles, shoulders and elbows. I experience weakness in the upper body. I have a sore throat, ear ache, one side of neck and head sore and swollen in the back, fatigue and chills.

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Patient Comments

Viewers share their comments

Lupus - Treatments Question: What treatments have been effective for your lupus?
Lupus - Experience Question: Please describe your experience with lupus.
Lupus (Systemic Lupus) - Prevention Question: What prevention measures do you use to avoid getting lupus flares?

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