Patient Comments: Liver Cancer - Diagnosis

How was your liver cancer diagnosed?

Comment from: Anita, 65-74 Male (Caregiver) Published: August 23

My dad has been diagnosed with liver/lung cancer. He is 69 and he did not experience any symptoms, besides the coughing of blood which lead him to the ER in the first place. He has no idea that the doctors have given him 3 to 6 months (his wife's decision). He is in good spirits and is taking chemotherapy every other week. After reading some of these posts I feel like he should know, but respect his wife's decision and don't want his spirits to be down. I love my dad very much and don't want to see him wither away or suffer. What is a daughter to do? Should he be told or not?

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Comment from: LRod, 45-54 Male (Caregiver) Published: April 16

I am a caregiver; my husband suffers from liver cancer, hepatitis C, and cirrhosis. He was given a grim diagnosis of 1 to 3 months. I am blessed to say that he has survived his diagnosis by 1 year, 5 months and still fighting. He started with Nexavar then had two chemoembolizations. The second one was successful, but when we went back again for the two-month CT follow-up, the cancer had spread to the lungs. It's a very aggressive cancer. Now we are trying Cisplatin and Xeloda. He just started this week and is feeling the secondary symptoms, and the pain is almost unbearable. This is being treated with morphine. He gets very sleepy and almost intoxicated, but it helps with the pain. Emotions run high, and yet he's a real fighter and always has had a positive attitude. This is key.

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Comment from: MOBSeattle, 65-74 Male (Patient) Published: April 05

My brother was diagnosed with advanced live cancer about a month ago and has about a month to live. The tumor is too large to treat. He has hemochromatosis, which I believe is the likely cause. I'm concerned and am scheduling a liver exam for myself. In researching, I don't think hemochromatosis is viewed as seriously as it should be. I believe that doctors are rather ignorant of this disease. Although my iron was removed 20 years ago, the rise of liver cancer remains high and I should be scanned once a year. I feel my brother's cancer might have been found earlier if he had been on a watch list.

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Comment from: sarah, 13-18 Female (Patient) Published: November 30

I am 14 years old and the doctors have just found out that I have liver damage. Now they are doing further investigation. I have got most of the symptom of liver cancer and the pain on my right side just below the ribs is unbelievable. When I have the pain all I do is vomit and just think I don't have long left. I really can't take all this stress as my hair is starting to fall out and my exams have started as well. I have never drunk in my whole life. This is the worst life a 14 year old girl could have. My last wish is to see my hero Beyoncé hopefully I will live to see her live in concert.

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Comment from: Tony, 65-74 Male (Caregiver) Published: October 11

I'm writing to alert you to a little-talked about side effect of radioembolization treatment for liver cancer that is causing my dad to suffer right now. My dad had colon cancer which spread to his liver. The colon cancer is gone as a result of chemo and radiation treatments, but the liver cancer is still there. He tried a couple ablation procedures which helped a little, then had radioembolization (putting radioactive molecules into tiny glass beads, sticking the beads next to the small cancer lesions and hoping they kill the cancer). He underwent this treatment in April and after a month, felt a little better and the ct scans showed slight reduction. We did a 2nd treatment in early August and its October now and he's still suffering from the after-effects. His stomach is constantly in pain constantly! He's nauseous, can't keep any food down, and constantly tired because he can't sleep well with the pain in his stomach. Before the treatment, the dr didn't say anything about possible stomach side effects (honestly though, it probably wouldn't have mattered...there's always some side effect(s) to elect), and later in the fine print of the brochure on the treatment, he saw that radioembolization sometimes leaves patient with permanent stomach damage. Just great! I guess it's just a pretty touch scenario all the way around. Best of luck to you all and please know the above before considering radioembolization (esp multiple treatments w/in a few months of each other).

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Comment from: Ruth, 55-64 Female (Caregiver) Published: July 13

2 years ago my husband developed colon cancer, this was operated on but within 3 months it had spread to his liver. 65pc of his liver was removed; we were told this should be looked on as a cure. 3 months later the cancer was back in his liver, also outside his bowel and now in his bones, but he still has reasonable quality of life even though we know he will die from this within the next few months. Was it worth the chemo, radiation treatment, two major operations. No not really if I am honest, but I am not the patient, he is. Nothing stopped this cancer spreading. I might add my husband does not drink, gave up smoking 20 years ago.

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Liver Cancer - Describe Your Experience Question: Please describe your experience with liver cancer.
Liver Cancer - Treatment Question: What kinds of treatment, including surgery, have been used for liver cancer in you or a relative?
Liver Cancer - Causes Question: What do you think are the causes of your liver cancer?
Liver Cancer - Symptoms Question: What were the signs and symptoms of liver cancer in you or someone you know?

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