Patient Comments: Liver Cancer - Describe Your Experience

Please describe your experience with liver cancer.

Comment from: Elias, 35-44 Female (Caregiver) Published: April 17

My brother was diagnosed with liver cancer on the 5th November 2013 when he was 38 years old and a hardworking man. There was difficulty diagnosing the 4 spots on his liver, for nothing showed that he had any illness. A month after being diagnosed he was put on chemotherapy drug called Nexavar, it is a pill form therapy. It worsened his condition and the treatment was subsequently stopped. He lost a lot of weight and also was hospitalized numerous times. For us as his family it was awful to witness the pain he had to go through. Cancer was like an enemy in our minds, it made sure we started attacking each other. Cancer does not care how old you are, how rich you are, what kind of talents you have; it kills in the utmost ugliest manner you can think of. My brother died after he fought a life battle; he came out the winner because he showed what a fighter he was. He died on the 13th April 2014.

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Comment from: ispguy, 75 or over Male (Caregiver) Published: December 17

My dad passed from primary hepatocellular carcinoma at the age of 81. This is a horrible disease. The last pictures I have of him he looks like a skeleton. His primary care found a spot on his liver and insisted it was not cancer. My mother knew it was. This is a very hard illness to diagnose, as it is not caught until it has caused damage beyond repair. The cancer spread into his bile ducts and he had numerous surgeries to insert stents. The cancer still clogged the stents. I remember telling my mom that he was bleeding out of the drain that he had. This was three days before his passing. I am thankful that he did not suffer too much physical pain; mentally it was horrible. He would go to the hospital every other week and be seen by the 10 doctors who were treating him. Eventually they said there was nothing else they could do. It was at this point he went on hospice. He died about one month later.

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Comment from: Texas Widow, 55-64 Male (Caregiver) Published: November 07

My husband (he had hepatitis C from military service) started feeling not right on Sept, 27 2013. Three to four days later, he had a massive swelling in legs and abdomen. We went to the primary care doctor on Oct. 18 and was sent to specialist; earliest appointment was December 9th! I could tell something was wrong, he was tired, itchy, and very cranky. I tried to get him to a gastroenterologist earlier. Then on Friday Oct 25th, he was feeling very lightheaded. When I dropped him off at front of clinic, he stumbled due to lightheadedness. It scared me to my core. We saw the gastroenterologist and they said we needed to admit him because they had to get his blood pressure down and get the fluids off. They did an ultrasound and he had a very bad night on Friday. All night he had bloody stools. Saturday morning they told us it looked like, from the ultrasound, that he has displayed liver cancer but once we get fluids off and BP down, we will do MRI on Monday. They came up with a treatment plan with IV for blood pressure and to jump start his kidneys. Finally he got treatment going on Saturday at 5:30. Beginning at 10:30, he started massive vomiting and passing stools of blood. I was very frightened and requested him to be moved to ICU at 3:30 a.m. Sunday. They said his veins in the stomach were "seeping blood". They got his blood pressure up to 95/45 and did a procedure to stop the bleeding but it did not work. My poor husband, after going to the doctor on Friday afternoon, died Monday, October 28 2013 at 2:14 a.m. I cannot wrap my head around this.

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Comment from: bunnymc, 35-44 Female (Caregiver) Published: October 24

My mother was 39 when she was diagnosed with liver cancer. She was diagnosed in August, just 2 days after she turned 39, and died in February, 6 months after. She had been through chemotherapy and radiation. Her pain was a sharp pain in the right side of her back that led her to go to the doctor. She thought she had pulled a muscle. She didn't drink or do drugs, so this type of cancer was a shock to us.

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Comment from: Beebosmommie, 55-64 Female (Caregiver) Published: March 19

My sister at age 56 was diagnosed with Stage 4 Advanced Adenocarcinoma Liver Cancer from an unknown primary in September. She passed away 4 months later. The cancer ate right through the many rounds of chemotherapy she was given. It was so aggressive. It has been said that people who live in 3rd world countries are at a higher risk of developing this type of cancer because they don't have access to the advanced medical care that people in the United States easily have. My sister was an American living in the United States. How could this happen to someone who was under the care of 3 doctors one of which was an endocrinologist, a gastroenterologist and an internist? How does this type of cancer go undetected? Had she not gone to her internist complaining of her side hurting and that doctor doing an X-ray of her ribs and a CT scan, she would not have known she had this cancer. The CT scan picked up the top of her liver which showed the tumors. Her doctor told her that this cancer had been growing for at least 1 year. How did it run under the radar? The doctor's explanation was it's like a submarine, it lays low for a long time and then all of a sudden it decides to attack and by then it's too late. Well can't they do a blood test to determine if you have a submarine laying at the bottom of your ocean? Needless to say, my sister suffered a horrendous death. We finally had to decide to have the hospice people sedate her to put her out of her painful misery. No one should have to suffer a horrendous death like that. For heaven's sake they put dogs and cats down with more compassion.

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Patient Comments

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Liver Cancer - Diagnosis Question: How was your liver cancer diagnosed?
Liver Cancer - Treatment Question: What kinds of treatment, including surgery, have been used for liver cancer in you or a relative?
Liver Cancer - Causes Question: What do you think are the causes of your liver cancer?
Liver Cancer - Symptoms Question: What were the signs and symptoms of liver cancer in you or someone you know?

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