Patient Comments: Liver Cancer - Describe Your Experience

Please describe your experience with liver cancer.

Comment from: lisa, 65-74 Male (Caregiver) Published: October 24

My husband has liver cancer. He was treated for Hepatitis C about ten years ago and now has cancer. He is still going to work and began chemo this week. I am not ready for him to be gone this soon. I need 9,10,11 months to process this but I don't want him to suffer. He has not developed swelling or jaundice yet so I am hopeful for a few good months.

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Comment from: Deborah, 45-54 Female (Caregiver) Published: September 11

My dear friend of 30 years began her battle with hepatitis C a while back. They then discovered a 4 cm tumor on the liver. I went with her last week to the hospital to have a resection. It was decided that this was the best option, to try and eradicate the cancer before giving a complete transplant. They opened her up and found eight more small tumors on the liver. So they closed her up again without removing any of the tumors. They sent her home with me two days after the operation. I now realize they sent her home to die; that was certainly the attitude we felt. She is now troubled with leg swelling. She seems to think or wants to believe that these things will be fixed, and all is well. However, I'm being told from friends and from research that these are not good signs, and she is dying quickly. Her body is closing down.

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Comment from: Amy, 55-64 Female (Caregiver) Published: August 08

My father was diagnosed with colon cancer last Valentine's Day. He went in for surgery and the doctors found that it had spread to his liver. They gave him two years with chemotherapy and a year without it. He got a second opinion and was determined to fight it. He is wasting away to almost nothing. He has been taking chemo treatments for five months now and tells me all of his reports from his doctor are good.

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Published: June 19

I thank you for the previous comments about liver cancer. My brother is currently going through the same symptoms. He was diagnosed with liver cancer after suffering from non-alcoholic cirrhosis. We feel he got it from medication. No one has ever explained to the family what to expect and how fast this progresses. I am angry with the hospice program and the doctors for not explaining to the family better. Everyday there is a change in him. He too is just a skeleton, and when I asked about not providing him food or water, they said, it would not help him. We just need to tell him it is OK to let go. I'm not ready to let go of him and he is not ready either. He thought going into the hospice program would help the family, but it has failed us immensely. Everyday, my sister and I get sick thinking about what change is next and how much longer he will be with us. He has had a couple of good days and we ask, "is this his burst of energy?" No, one can tell us. I know, in my heart, that he is not ready to let go!

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Published: June 13

I just visited a close friend who was diagnosed with liver cancer last October; I don't think she will make it to her 42nd birthday next week. Her mother was telling me she was walking a bit last night and even eating and talking. Today she took a turn for the worst. My 15 year old son accompanied me to the hospice and he was so shocked to see how wasted she was... all in a matter of several weeks.

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Published: June 11

My brother passed away on from hepatocellular carcinoma. We knew something was gravely wrong about the 2nd week of July and it was confirmed about a week or so later. He not only had a tumor on his liver, but his entire liver was filled with "floating cancer cells" so there really was nothing they could do. In the course of 2 months, I basically watched him wither away to next to nothing. He truly looked like a walking skeleton. He was oh so brave, however, and only began taking pain medication the night before he passed away and that was just one OxyContin pill. I am assuming the cancer had to have destroyed some of his nervous system because, given his condition, he certainly should have been in extreme pain, but he wasn't. He had one hospitalization wherein they drained something like 18 liters of liquid from his legs, feet and abdomen. Before he passed away, this was beginning to recur. I spent a lot of time researching what was going to happen to him so that I would be prepared and his case followed the information, textbook. Two weeks before he passed away, he got his sudden burst of energy and was cooking up a storm for his family and friends. He kept saying, "I'm feeling better and better each day." I wondered if this was a sign of the end nearing. Now I realize that it was. The night before he passed, he had us take him to the ER, even though he was set up with hospice care and we had a complete "comfort kit" for palliative care. He complained that his spine was excruciatingly painful. At the ER, we were told that he was going to get increasingly sick over the next few days, as his kidneys were shutting down. Well, he passed away later that night. To anyone who reads this and perhaps, it may sound crass, but truly, you need to prepare yourself for all you will see -- it is frightening.

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Patient Comments

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Liver Cancer - Diagnosis Question: How was your liver cancer diagnosed?
Liver Cancer - Treatment Question: What kinds of treatment, including surgery, have been used for liver cancer in you or a relative?
Liver Cancer - Causes Question: What do you think are the causes of your liver cancer?
Liver Cancer - Symptoms Question: What were the signs and symptoms of liver cancer in you or someone you know?

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