Patient Comments: Interstitial Lung Disease - Treatments

What forms of treatment have you or a relative had for interstitial lung disease?

Comment from: Roxanne 52, 45-54 Female (Patient) Published: May 21

I was diagnosed with interstitial lung disease (ILD) 6 months ago. We thought I had pneumonia a few times, last time it didn't go away. I"m in a lupus flare, now I have hypersensitive pneumonitis. I was on Imuran and prednisone, it didn't help, I got worse. I have mold Aspergillus niger and Aspergillus flavus. I"m in my basement which we're having cleaned. The doctors say I will have a good life as long as I stay away from mold. I"m now on Cytoxan and prednisone. I have a lot of pain in my lungs. I didn't have fibrosis and now I do. A lot of doctors are clueless about mold. Mine were on it fast I had lavage, I live in pain and the doctors had no clue what was wrong with me.

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Interstitial Lung Disease - Describe Your Experience Question: Please describe your experience with interstitial lung disease.
Interstitial Lung Disease - Causes Question: What was the cause of your interstitial lung disease?
Interstitial Lung Disease - Symptoms Question: What were the symptoms of interstitial lung disease experienced by you or someone you know?

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