Patient Comments: Interstitial Lung Disease - Symptoms

What were the symptoms of interstitial lung disease experienced by you or someone you know?

Comment from: Leavemealone, 55-64 Male (Patient) Published: March 21

I was first diagnosed with interstitial lung disease in 2006. I was admitted to the hospital for pneumonia and was very sick with a fever, chest pains and unable to eat. I spent the next week in the hospital, where they did all kinds of tests, including a bronchoscopy. I was diagnosed with ILD. I researched the disease and was told by my pulmonologist that life expectancy for my stage was about 4 to 5 years. I did not have any treatment except oxygen therapy until 2009. I tried prednisone and gained lots of weight over the next eight months. I had a heart attack in November of 2009 and the doctor told me I needed to lose weight. Over the next two years, I lost 70 pounds, but had two more heart attacks and stents put in. I now have three stents and am on 6 liters of oxygen. I'm hoping to get a lung transplant. I've been diagnosed with terminal end-stage lung disease and hope I get this operation. If not, it's been seven years since I was first diagnosed and I am still “cutting the rug.” Good luck if you have or get this disease.

Was this comment helpful?Yes
Comment from: p.m.roy west bengal, 55-64 Male (Patient) Published: May 13

I was first diagnosed with ILD in 2007 in India. At first I was taking medication and started yoga exercise medicine per month, and I stared Yoga exercise as per directed. As a result, gradually every six months, the doctor reduced my medication. At my most recent doctor's visit, he said I require no more medicine. I've become stable over the last two years. I suggest all ILD patients start yoga exercise and also continue the medicine, as per advice from the doctor.

Was this comment helpful?Yes

Patient Comments

Viewers share their comments

Interstitial Lung Disease - Describe Your Experience Question: Please describe your experience with interstitial lung disease.
Interstitial Lung Disease - Causes Question: What was the cause of your interstitial lung disease?
Interstitial Lung Disease - Treatments Question: What forms of treatment have you or a relative had for interstitial lung disease?

Patient Comments are not a substitute for professional medical advice, diagnosis, or treatment. Never delay or disregard seeking professional medical advice from your physician or other qualified health provider because of something you have read on MedicineNet. The opinions expressed in the comments section are of the author and the author alone. MedicineNet does not endorse any specific product, service or treatment.

Alert If you think you have a medical emergency, call your doctor or 911 immediately.

Report Problems to the Food and Drug Administration

You are encouraged to report negative side effects of prescription drugs to the FDA. Visit the FDA MedWatch website or call 1-800-FDA-1088.