Patient Comments: Fibromyalgia - Symptoms

The symptoms of fibromyalgia can vary greatly from patient to patient. What were your symptoms at the onset of your disease?

Comment from: nanarae, 55-64 Female (Patient) Published: March 31

My fibromyalgia began after a strep infection right after Hurricane Andrew. All my doctors were "blown away" and the only way to check what I thought was a bad cold was waiting in a triage line outside of a hospital- so I didn"t get it checked. A few weeks after my “bad cold", I came down with rheumatic fever and was in intense pain and had incredible fatigue for weeks. My blood lab tests were through the roof. The pain/fatigue never really subsided, and I felt awful and struggled at work all year. My doctor thought I had rheumatoid arthritis. The following summer I was diagnosed with fibromyalgia. That was almost 22 years ago, and my life has been full of pain, fatigue, and tears. I am just barely able to work (teacher) and I hate to give in and quit. My life has been greatly impacted and limited as a result of fibromyalgia.

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Published: November 07

Fibromyalgia attacked my body more than 10 years ago after knee surgery. I was in a wheelchair for about six months, and I used a cane for another six months. I did not even know how to walk anymore. I fought the fibromyalgia with a lot of pain pills and tears. I was on so many medications that it damaged my stomach lining. Learning to break the cycle wasn't easy because it was painful. It caused tiredness and depression. To this day, I am no longer on meds, and I live a new life with a new career. I have no more depression. It tries to creep in, but I fight it off through prayer. I have bowel problems, this pain that pain, etc., etc., etc. I find that when I help others and talk about it, it brings hope to others. Learning to stop the cycle is a battle. But there is hope.

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Comment from: STEVE, 55-64 Male (Patient) Published: April 08

I am a 55-year-old male who was diagnosed with fibromyalgia in 2007. At the time, I was taking more than 32 prescriptions and pills a day. In 2009, I started seeing a neurologist, who took me off the crazy pill-popping treadmill and put me on Lidoderm patches. About eight months later, I was doing extraordinarily well and not using the medications as much. After knee surgery I went from almost good to unable to function. My doctors said that something was very wrong. I went to the best joint specialist in the area and he told me the replacement surgery was perfect, but my pain was from fibromyalgia and would not get better. So now I'm worse off than before. I'm in constant chronic pain, and my knees don't function for more than a few minutes. I can hardly walk. The hospital where I had the surgery has a policy that, after three months, the surgeon can no longer prescribe narcotic pain medications. After three months, my neurologist picked up the ball to write the prescriptions. But a year and a half later, nobody is willing to prescribe them. Between the pain and fatigue, there are weeks at a time that I don't get out of bed. I can't work and I do my best to be a caregiver for my elderly mother and aunt, who are both in their late 80s. Standing up is so painful. If you have fibro and are having surgery please inform your doctor.

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Published: July 07

I've had fibromyalgia for about 18 years. For the first 5 years I had no idea what was wrong with me. Doctor after doctor, could not find anything wrong with me. I think after a while they thought I was making all this all up, as all of my test came back OK! Finally one DR. gave me the diagnosis. Since that time I have gone through so much. All of the symptoms you have mentioned I have had or still have. Life is not too much fun any more, just no let up. I just keep hoping they will find a medicine or treatment that can really help us all.

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Published: July 07

Two months ago, I was diagnosed with fibromyalgia. After years of going to see the doctor, I finally got some answers. The pain I feel seems to never go away-hurting in my lower back, legs, neck, even sometimes radiates to the very tip of my toes. I am 32 years old and I don't know if I want to see how I feel at 40 because the pain is very intense. I'm trying to deal with it without meds-because I'm trying to have a child-don't know if I'll be able to do it!

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Published: July 01

I was just diagnosed with fibromyalgia. I am 44 years old and I use to be very active. One day (about 10 years ago), I woke up with every single joint in my body aching. I was also very fatigued. I went to the doctor and was diagnosed with Lyme disease. I was put on an antibiotic for 30 days and had another blood test done. It came back positive again for Lyme disease. My doctor called a specialist and they agreed that my body was reading a false positive. I did nothing after that to find out why I had pain. I just learned to live with it. As time went on I noticed my pain worsening and my knees would hurt going up steps (I blamed that on all the years of high impact aerobics), and I was stiff and sore all the time and I woke up tired all the time. Then about two months ago, I was at the store and I could barely walk. My whole body hurt so bad I just stopped and went home. My doctor referred me to an arthritis doctor who diagnosed Fibromyalgia and I have been taking 30 milligrams of amitriptilin and two Aleve twice a day now for four weeks. I don't feel any better, and all I want to do is sleep. I have to force myself to clean the house, go to work and keep up with the gardening that I love.

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Fibromyalgia - Treatments Question: What treatment has been effective for your fibromyalgia?
Fibromyalgia - Lifestyle Changes Question: What lifestyle changes (diet, exercise, etc.) have you found helpful in relieving fibromyalgia pain?

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