Patient Comments: Fibromyalgia - Symptoms

The symptoms of fibromyalgia can vary greatly from patient to patient. What were your symptoms at the onset of your disease?

Published: June 20

Does anyone have a clue if former migraine sufferers and fibromyalgia are related? I also was treated for Post Traumatic Stress several years ago which I received extensive therapy for and am now awaiting word from an orthoprdic to my regular MD on further testing since nothing else is showing up MRI and x-ray wise on possible fibromyalgia. I would love to have some feedback.

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Published: June 20

I was diagnosed with Fibromyalgia around 6 years ago although I'm certain I have had it much longer than that. I have suffered from sleeplessness and fatigue for nearly 20 years. My first prescription was or an arthritis medicine that has been removed from the market. My neurologist prescribed Cymbalta around 4 years ago. Cymbalta has now been approved for Fibromyalgia treatment. Although it did relieve some of the pain, I still suffered from fatigue. I have been eating "Healthy Chocolate" for a month, and I'm happy to report that I'm off of the Cymbalta, and my pain relief is more pronounced by eating the chocolate than taking the medication. I'm able to get out of bed in the morning and have more energy from consuming the antioxidants. Also, I found that eliminating fizzy diet drinks helps to alleviate the pain.

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Published: June 17

I've always had muscle pain and discomfort, even as a child, but I was told it was stress, etc. It wasn't until the fatigue was so debilitating (that life as I knew it ceased entirely) that I was diagnosed. I've always handled pain well, but I didn't get proactive until the fatigue. I thought insomnia and chronic pain was normal, and I can never remember not having them. It wasn't "real" to me until I could not even shower and had to lie in the tub just to be rinsed off.

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Published: June 13

I think I had fibromyalgia a long time before I was diagnosed. I was glad to see another RN's explanation, for I too loved my job as a nurse. I still miss it. For about two years before the diagnosis, I would have either bronchitis or pneumonia in Nov, Dec, or Jan during the winter months. At first, I thought I was just stressed as an explanation for why my shoulders and neck ached. The muscles were just very tight. I had headaches. Again, I thought it was due to stress. After one November sickness, I just could not seem to bounce back. My doctor said I had mono, and I had to be off work for six weeks. This happened twice. Finally, I drug myself back to the doctor and told him "something is very wrong with me." My skin felt very "sore," joints, muscles, shoulders, elbows, everything on me hurt. He referred me to a "fibro" doctor. Turns out, I was diagnosed that day. I determined I would get rested and feel better. I was a fighter, not a quitter I told myself. We tried several different treatment modalities and medications. I worked for another two years. I have applied for disability. I was turned down, but I am going for it again. I sure want to work. I still need to contribute to that 401-k....It is not going to be enough!! I wasn't glad to have fibro, but was glad that finally, looking back, I could make the jigsaw puzzle into a picture.

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Published: June 13

Woke up in the middle of the night with extreme pain in lower left side. Began passing in and out, vomiting and loss of control of bowel. This was the night after 16 hrs of watching my grandmother die in front of me. It has been 7 yrs and still I still live with chronic pain daily.

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Published: June 09

For years I have suffered with extreme fatigue and it was to the point I could barely function, when I am able to stay awake, I suffer with a lot of aches and pains. My legs hurt so bad that it is difficult to walk for long. My shoulders hurt all the time and I have many headaches. I also deal with IBS on a daily basis. If I carry heavy things it will put my neck and shoulders into constant pain and stiffness.

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Published: June 09

My symptoms (pain between my shoulder blades) started when I was in my late thirties/early forties ( also dealt with an alcoholic husband and chronic gambler so raised my 3 kid's alone) and always had VERY stressful nursing jobs, always working overtime whenever I could), over driven and Type A personality didn't help. :) I am 55yo now (unable to work at all since age 47, am a masters level R.N./M.S.N. and I LOVED my job) and fibromyalgia still has me in it's "grip”. After trying everything including pressure point injections (many), acupuncture (helped the pain while the "needles" were in me), physical therapies including traction of my neck and exercise (limited help if any), taking Cymbalta has been helpful with my "depression" (who wouldn't be depressed when you can't even socialize due to widespread pain) yet still leaves me dealing with lack of restorative sleep, irritable bowel (really bad) and bladder). Also tried pain management (this can get really ugly) which failed miserably. Just tried Lyrica 75mg twice daily and am amazed at the results for the past two days. Though expensive this might be part of our "solution" in treating fibromyalgia. I have so much more to share for those who are interested. Believe me, I FEEL YOUR PAIN!

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Fibromyalgia - Treatments Question: What treatment has been effective for your fibromyalgia?
Fibromyalgia - Lifestyle Changes Question: What lifestyle changes (diet, exercise, etc.) have you found helpful in relieving fibromyalgia pain?

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