Patient Comments: Fibromyalgia - Symptoms

The symptoms of fibromyalgia can vary greatly from patient to patient. What were your symptoms at the onset of your disease?

Published: July 01

One of my first symptoms was an excruciating pain in my head. The next was I couldn't move my right arm with out getting a lot of pain. I'm taking Lyrica now , it helps but I still have to be careful not to over do things.

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Published: July 01

I have never been diagnosed as having Fibromyalgia. In my 20's I had a fatigued feeling in my back and legs during and after a night out. I always figured (normal) in my 30's I seemed to get a little worse. Then I had a back injury (a broken tail bone. In my early 40's a very bad lower back attack. The leg pains Muscles got more and more frequent, 50's almost debilitating. Since mid 50's I never knew there was a condition called Fibromyalgia. I was treated for depression, I felt terrible because I had no energy, couldn't and still can't sleep I had an MRI done and there is a bulge on my sciatic nerve and narrowing of the L4 and L5 lumbar. I just got over a severe lower back attack. I forced myself to do a couple of jobs through Christmas that were urgent. I wound up in bed with heat pads and naproxen; I could not even set on the couch or ride to town without severe pain. You just feel like your life has fallen apart and there is no hope for you and nobody knows how you hurt or feel. I am going to the neurologist for a review of blood tests and possible treatment. I am supposed to get a sleep study done three hours is an average nights sleep without meds.

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Published: June 30

I have finally found a doctor who diagnosed me correctly with fibromyalgia. I have spent years and a lot of money on tests for arthritis, sleeping problems, Lyme disease, etc. before this. Now, I just have to experiment to find a fix. My new doctor tried me on lyrica, not good. Could only stay on it 10 days before the side effects (extreme dizziness, sleepiness and couldn't concentrate or even finish a sentence at work) took over. Also, have 2 bulging disks in low back not helping things! Have been on narcotics for back pain for 3 years and it's the only thing that gets me through the day but the constipation thing is really bad. Have tried several anti-inflammatory meds, pain meds etc. Feel like a test-lab rat! Keep up the new info on this problem! It gives me hope! Thanks.

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Published: June 30

Starting with migraines at the age of 16, I suffered with them right through my two pregnancies. I also have IBS. Depression set in around age 35 and the tiredness followed. I could and still can sleep 18 hours a day and still feel tired. A sleep study showed that I had non-REM sleep abnormalities. One day I woke up with the most pain I have ever felt. I could not get out of bed without the help of my husband. It was sudden. I did have swelling of the hands and feet and was quickly misdiagnosed with RA. After a lot of doctors I was diagnosed with fibromyalgia. I suffered a lot and my depression got worse until I was hospitalized. My medication was changed to a serotonin based antidepressant called Lexapro. My mood improved and my pain started to go away. We got a swimming pool and that really helped my pain. The floating in the pool along with the warm water helped with the tenderness. But, I have to say that the most help I got was from the Lexapro. I found this article real beneficial in just reassuring myself that my pain is real but also showing me that the medication I am using is why I am getting a lot better. Here is to a lot of hope for everyone else. I do believe that IBS, Migraines, Non-Sleep and Fibromyalgia have a lot in common.

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Published: June 30

I'v had fibromyalgia now for 4 years, it has completely changed my life, I used to be so in charge of myself, self motivated, confident, fun, now I feel so useless and depend on others for loads of everyday things. I get really frustrated because I still feel like the old me but my body can't keep up. I get really tired and feel nobody really understands what a struggle it is to keep going. I feel like people think I'm faking it a bit as I no longer work. I wish they could feel my pain just for a day I get so depressed really want the old me back.

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Published: June 27

Age 34 I became a single mom of 3, my fatigue started then, slowly at first. Age 42 one day I went up the stairs as usual and collapsed at the top the pain in my knees actually knocked me off my feet. Then day by day my fingers started to hurt, I couldn't even hold a potato to peel it. I went to my doctors a week later by which time I couldn't dry my hair or peg washing out. He looked more than a little perturbed at the list of aches and pains I gave him. He told me to come back in 6 weeks. He thought it might be post viral arthritis after about of flu. I went back the pain was just as bad if not worse. He decided it was just arthritis and wanted to give me painkillers and send me on my way. The pain made me stick up for myself for once. I argued that no it wasn't arthritis I showed him the tendon on my knee, I gripped it to show him that the pain was NOT the joint. He then gave in and referred me to rheumatology clinic where I was diagnosed with Fibromyalgia. I now have more of a problem with fatigue than pain, I have found ways to cope with most of the pain. But living in a permanent fog where I can't think straight is affecting my work and life in general. I am so tired that I can't do much and that helps by stopping the pain being more aggravated. My mom age 76 helps me tidy up, it is so depressing to look round and see that I can't do even the basics. On a good day I cook and freeze so that I can eat good food for the rest of the week. There are times I don't eat because I am too tired to bother and I go straight to bed. I am now 49. My mum 76 can remember things better than me, do more, walk more etc etc etc. I now have to send my 14yr old daughter to live with her dad as I just can't cope anymore. That hurts but it's not good for her to be with me any longer.

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Fibromyalgia - Treatments Question: What treatment has been effective for your fibromyalgia?
Fibromyalgia - Lifestyle Changes Question: What lifestyle changes (diet, exercise, etc.) have you found helpful in relieving fibromyalgia pain?

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