Patient Comments: Fibromyalgia - Treatments

What treatment has been effective for your fibromyalgia?

Comment from: hyper to hypo, 45-54 Female (Patient) Published: June 26

At 24 years old I am hyperthyroid. Take a pill every day to suppress thyroid. Blood tests say the pill works, but I feel hyper and I can tell I am not getting deep sleep. For two years I have severe joint pain all the classic symptoms of fibromyalgia. I took the radioactive pill that killed off my thyroid (became hypothyroid) and within 3 days my joint pain and fibromyalgia disappeared. That happened 25 years ago and I am never got fibromyalgia again.

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Comment from: butterflygurl, 45-54 Female (Patient) Published: June 21

I am currently on a narcotic medication for other health issues. However, my fibromyalgia is never treated sufficiently without a narcotic. I want to point this out most importantly due to the fact that many studies show that narcotic pain medication is not warranted for those with fibromyalgia pain. Also, a muscle relaxer three times a day is very important due to intense spasms to the point that I form large knots in my muscles (my son use to call them tumors). Finally sleep medication, as it is nearly impossible to make it through the night or day without some amount of sleep and I just can't seem to find it.

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Comment from: merlin1, 55-64 Female (Patient) Published: May 09

I was diagnosed with fibromyalgia about 20 years ago. The pain is quite severe at times and chronic fatigue is very hard to live with. The only thing that works for me is cortisone shots. They relieve the pain for short periods of time and are very painful, but, the pain relief I get from them is worth the pain of the shots. I am on medication for depression, which is caused by the pain and fatigue. I do work every day, take care of a disabled husband, and a 4 year old grandson. My best advice is to go to a doctor that knows about fibromyalgia. Until you find someone that knows about fibromyalgia you will not be able to function and don't give up, keep going, live life the best you can. It could always be worse!

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Comment from: 45-54 Male (Patient) Published: October 03

My fibromyalgia came on me all of a sudden one night around 4 a.m. I also have multiple sclerosis (MS) and had just started an injection treatment around seven hours before. It was my first injection of that medication. So now, four months later, I seem to be getting the pain a bit under control using Lyrica and vitamin supplements of Magnesium, Malic Acid and DHEA. My pain is not as severe as the first month, but each day is always an experience not knowing how I will feel. I will repeat, "I want my life back."

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Comment from: lindalou, 55-64 Female (Patient) Published: August 04

I was diagnosed with fibromyalgia in 1987, so I have been through a myriad of treatments. I also have RA and OA, so some of my symptoms overlap. Right now I am doing very well on 3300 mg Neurontin and 60 mg Cymbalta.

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Comment from: angela, 35-44 Female (Patient) Published: April 19

I am a 38 yr old mother of 2. Last year I was weed eating, playing ball and walking and playing hide and seek with all the kids. This year I am on meds with chronic pain and fatigue. I have been fighting pain for years and years. I feel like life is over for me. I have not had a great day in months. I want my life back. I want to do the things I love again. I can take a lot of pain and have for years but all of this new pain has just brought me to my knees.

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Comment from: Coral, 55-64 Female (Patient) Published: March 16

I was diagnosed with fibromyalgia when I was 49. I am now 62 and still suffering. I had amytryptolened and anti-inflammatories, but I didn't like the side effects. Over the years I have tried to cope with the pain without any meds, but it is very difficult. I have a friend who has given me massages, and they really helped. She also makes up oils to massage into painful areas, which I administer myself and they are very helpful. I walk about an hour a day in total. I try to keep going, but it isn't easy at all and can get me down a lot of the time. It helps to keep smiling and have a positive attitude, but it doesn't take away the pain.

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Comment from: meowth, 55-64 Female Published: March 15

I used the over the counter drug SAM-E...religiously over 3 years for my fibromyalgia. I used the brand that only contains 200mg enteric coated so it doesn't upset the stomach. It took 3 months to feel the effects. I took 2 in the morning and one no later than 2pm in the afternoon. When I started getting my energy back, I cut back to 1 in the a.m. and one in the afternoon. I went into remission and only every so often now does it flare up. I continue to watch my activities so I don't overdo it...that's when I feel it most. I work part time but no more than 6 hours a day or I get achy and fluish the next day.

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Patient Comments

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Fibromyalgia - Symptoms Question: The symptoms of fibromyalgia can vary greatly from patient to patient. What were your symptoms at the onset of your disease?
Fibromyalgia - Lifestyle Changes Question: What lifestyle changes (diet, exercise, etc.) have you found helpful in relieving fibromyalgia pain?

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