Patient Comments: Fibromyalgia - Treatments

What treatment has been effective for your fibromyalgia?

Comment from: WhininginFL, 75 or over Female (Patient) Published: August 29

No medications, over the counter or prescribed, have been of any benefit. All caused such adverse side effects, I couldn't take them. I do take a low dose of gabapentin which seems to make me a little 'out of it' and masks some of the pain. I've taken supplements supposedly developed for fibromyalgia, no help. I've gone to a chiropractor, had massages, done physical therapy. I would eat dirt if it would give me a good night's sleep an evening and night without pain and enough energy to live a normal life.

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Comment from: Anne, 45-54 Female (Patient) Published: August 10

Angela - I hear you about being a mom and active and all of a sudden you can't do ANYTHING because of the pain and fatigue. I have four kids and they are basically on their own. They are raising themselves. It stinks. I am taking Cymbalta 60mg, Fentanyl patch 75mcg and hydromorphone when I need more pain relief. I have gone three and a half years in excruciating pain. Fibromyalgia has been suggested. I don't have the pressure point pain. I have 24 hour head pain and some body pain.

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Comment from: RS, 45-54 Male (Patient) Published: June 28

I have been suffering from fibromyalgia for more than a year and, as a consequence, my left shoulder has been frozen for the last six months. Now I am on some exercises, but improvement is very, very slow. Sometimes I feel it will take a very long time to get well. One thing that is very important that I would like to point out is that I also suffer from C-reactive protein condition (CRP).

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Comment from: Maddray, 45-54 Female (Patient) Published: January 27

I have had fibro for about 16 years. I'm in the medical field. First thought I had flu that wouldn't resolve, abnormal Sed Rate that later, through the years diagnosed as fibro. I think most patients will tell you the antidepressants are worthless for pain. I found Neurontin and Topomax to be of help, somewhat but still have to take Lortab and Soma, prn. Deep tissue massage is crucial. When I look back to teenage years, I had severe muscle spasms then and went to ER. If people get depression, that should be treated but I don't think it's symptomatic of the disease. All chronic pain patients have to keep their spirits up, no matter the illness.

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Comment from: fibroninja, 55-64 Female (Patient) Published: January 21

Like many, I was given a plethora of various drugs. One of which almost killed me, but I finally found a pain doctor, who although, despite a horrible bedside manner, prescribed Amitriptyline that finally helped me get more than two hours of sleep a night. I do take a few pain meds and muscle relaxers depending on how my day is. The pain is tolerable mostly, but the fatigue puts me down all day long and I have a husband who doesn't "do" housework. I quit the job I loved and worry about health insurance coverage. Massages are absolutely essential and I have a wonderful therapist.

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Comment from: Marguerite, 45-54 Female (Patient) Published: January 21

I take a low dose of Elavil and 50-100mg Trazodone at night to sleep. Was very sensitive to Cymbalta - it actually prevented me from sleeping whether taken in morning or at night. The new pre-gaba and older gabapentin meds caused so much grogginess and cognitive impairment they interfered with my ability to function at work. Therefore I stopped using them. Exercise: 30-60 minutes of walking or cycling followed very quickly by a bath as hot as I can stand followed very quickly by 45 minutes of accessible yoga. The FM has gotten worse since I hit menopause.

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Comment from: Hopeful, 45-54 Female (Patient) Published: March 29

I've had fibromyalgia for about 13 years. It took four doctors and about five years of testing to diagnose. This is a “real” syndrome and I do believe that in my lifetime there will be a cure. Every day is a struggle with pain and fatigue. What I choose to focus on is what I can do. I take 75 mg of tramadol in the morning and I work out 30 minutes a day on an elliptical. This has made all the difference in the world. You must keep moving. Exercise is the key in dealing with fibromyalgia. Yes, there are days I have to drag myself to do it, but I know it is going to help with the pain and fatigue. Hang in there and stay positive.

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Patient Comments

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Fibromyalgia - Symptoms Question: The symptoms of fibromyalgia can vary greatly from patient to patient. What were your symptoms at the onset of your disease?
Fibromyalgia - Lifestyle Changes Question: What lifestyle changes (diet, exercise, etc.) have you found helpful in relieving fibromyalgia pain?

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