Patient Comments: Fibromyalgia - Treatments

What treatment has been effective for your fibromyalgia?

Comment from: Lori, 45-54 Female (Patient) Published: February 01

I was diagnosed about 24 years ago. Fortunately, I had a doctor who was very current with latest medical reports and research. Most meds prescribed (flexeril, and others) were not helpful and had side effects that were worse than the FMS. I eventually had to quit working and had a very rough time for years. In 2006 (or 2007?), I was asked by my rheumatologist to participate in the clinical trial for Lyrica. Although, the initial adjustment to the drug was tough, I found that after a couple of weeks, the side effects were manageable & the pain relief was remarkable. It turned out that I was given a high dosage (about 500mg) during the trial. After the trial period ended, I worked with my doc to achieve an optimum dose. I opted to cut back on the morning dose to 50 mg and take 225mg in the evening. I was simply too groggy during the day if I took more than 50mg. As a mother of 3 children, I chose to sacrifice some of the benefits so I could function most days. In addition to Lyrica, I take 800mg of metaxalone (Skelaxin) at night. Occasionally, I need to take metaxalone during the day if I have a "flare". I take ibuprofen throughout the day as needed. I keep stronger pain meds (tramadol & Tylenol 3) on hand to take during really bad times. Overall, these meds keep the flares at bay and allow me to have a relatively normal life most of the time.

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Comment from: BSW, 55-64 Female (Patient) Published: January 20

Like so many of you, I believe I have had FMS for many, many years. I am 57 now and was diagnosed 3 years ago. My hometown doctor treated me for this or that for many years. He finally sent to a specialist who diagnosed me. I had to quit working in 2001 because the fatigue was so bad, I couldn't even speak. I didn't start having really bad pains until 2007. I had a horrible rash over my arms, legs, chest, and neck in 2006. I believe this is also related to FMS. I couldn't get disability because I quit working years before I was diagnosed. Just wanted to talk tonight. Thanks for reading.

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Comment from: santabarbarachiro, 55-64 Male (Caregiver) Published: January 20

Health care providers address problems involving the musculoskeletal system particularly the spine and neck. Their aim is to improve the overall spinal health of patients. People suffering from backache and neck pain frequently have an underlying problem with the alignment of the spine or may have muscle damage which prevents the back muscles from providing the correct support. They help realign the spine and relieve muscle tension with the use of various techniques. They can also treat joint problems, muscle spasms and ligament pain. Moreover, they stress the importance of correct posture from sitting, standing, to walking.

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Comment from: 25-34 Female (Patient) Published: December 21

I am 28, and was diagnosed with Fibro about 6 years ago. I went in for extreme pain and fatigue, while my pain was all over, my elbows seemed to be the worst, so I became a lab rat for a few months to rule out everything else. I went on Lyrica, which did nothing but make me gain a lot of weight. I finally found a doctor that knows what he is doing. If I push myself too hard, the weather changes, I get to stressed, or a few other "normal" things, I get really bad flares. I feel hopeless some days, but I hold out hope that one day, something that actually works and treats Fibro will be found.

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Comment from: gh, 45-54 Male (Patient) Published: October 05

I have had shoulder surgery and two neck surgeries to treat my pain. The surgeries did no good. The several doctors I had seen, finally decided they had no idea what was wrong with me and no suggestions what to do. My family doctor sent me to the clinic where I was diagnosed with Fibromyalgia with just one visit. I have been taking Cymbalta, which has lowered my pain by at least one-third. I still struggle at times, but it has definitely improved my condition. By the way I am a 48 year old male. It is not just limited to women.

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Comment from: 45-54 Female (Patient) Published: October 05

I was told I had fibro two years ago, but I believe it started long before that. I always had headaches or was always sick with something symptoms started with my two toes going numb then my knees started to ache swell shoot severe pain at times even actually glowed red in appearance. Sometimes it's my shoulders I actually pray for days that it's any body part other than my knees. I have a headache practically every day some mornings I wake up so stiff I literally have to crawl out of bed. Some days not many I have no symptoms at all. Have given up on working to unpredictable side effects of medication often make things worse. I have crying spells my skin crawls my legs jump and sweet a lot. I often wonder if it's this bad at 49 what is it going to be like when I'm 70.

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Patient Comments

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Fibromyalgia - Symptoms Question: The symptoms of fibromyalgia can vary greatly from patient to patient. What were your symptoms at the onset of your disease?
Fibromyalgia - Lifestyle Changes Question: What lifestyle changes (diet, exercise, etc.) have you found helpful in relieving fibromyalgia pain?

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