Patient Comments: Emphysema - Describe Your Experience

Please describe your experience with emphysema.

Comment from: mattierose, 65-74 Female (Patient) Published: May 17

I am 73 years old, and I was diagnosed with emphysema last October. It was quite a shock, as I stopped smoking 35 years ago. I am not too bad and can lead a normal life, but I wish I had never smoked.

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Comment from: Luanne, 25-34 Female (Patient) Published: May 17

I am 27 years old and was just diagnosed with emphysema three weeks ago. They tell me I am pretty close to having to be on oxygen, but we are hoping that for now the meds they have me on will help (and hopefully for a couple of years). I am scared as hell. My grandmother died six months to the day from when she was diagnosed with emphysema. I have two small children that I really, really want to watch grow up. I have tried quitting smoking, but I get stressed out and then light one up. I have no idea what I am doing; I just wish I knew what to do.

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Comment from: t2sku, 19-24 Male Published: March 23

I'm 23 and worked at a temp job in which a supervisor had me work as a lookout for more people cutting up a huge steel tank with a rubber liner, torches, and grinders. These released huge amounts of thick, burning rubber smoke in a confined area that I inhaled trying to do my job. Well, three years later, I have emphysema.

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Comment from: jillie, 55-64 Female (Patient) Published: August 26

I am a 62 year old female, recently diagnosed with emphysema, though I've long known what was coming, always in denial I guess. I smoked 2 or 3 packs a day, but quit cold turkey, now I am like a junkie in withdrawal. As I read all of the posts, I could reach out and touch the fear. We all have the same fears and I hope for all of us that better days are coming. That while it will be hard, hopefully the end isn't here yet.

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Comment from: jshepherd, 35-44 Female (Patient) Published: August 06

I'm a 39 year old female. I have never smoked or been around significant second hand smoke. But I was diagnosed with emphysema this week. I'm scared too death. I can't stop worrying. I just don't know how this could happen. I have read a lot about Alpha 1 antitropin deficiency and other causes. I have an appointment with a specialist soon.

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Comment from: mdixie, 65-74 Female (Patient) Published: June 03

I was diagnosed with emphysema last year. I do not have any cough or wheezing like I thought would happen. I am now on oxygen and inhalers but am still short of breath. I wonder if this is normal.

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Comment from: 35-44 Female (Patient) Published: May 26

I am 35 years old and I went to the doctor a week and a half ago with chest pain and they did a chest x ray. They found a spot and did a CT scan and then found emphysema and possible breast cancer. I am very afraid, I have smoked since the age of 14 and I find it nerve wracking to not smoke as I go crazy. I am afraid.

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Comment from: mothershelper, 75 or over Female (Caregiver) Published: May 26

My Mom has emphysema from passive smoking (my dad smoked), but is very allergic to many medications which affect her heart. Are there any natural alternatives that will give her some relief and "air" that she needs

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Comment from: taboo2u1, 35-44 Female (Patient) Published: April 23

I was diagnosed with emphysema at the age of 40 and was shocked as I smoke, but not a lot. I still haven't come to terms with this and I'm very scared. I get a lot of discomfort from this and would love to know how people come to terms with this.

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Patient Comments

Viewers share their comments

Emphysema - Symptoms Question: What were the symptoms of your emphysema?
Emphysema - Causes and Risks Question: If known, what was the cause of your emphysema?
Emphysema - Diagnosis Question: What kinds of tests and exams did you have that led to a diagnosis of emphysema?
Emphysema - Treatment Question: Please describe the treatments, therapies, and medications you've received for emphysema.
Emphysema - Smoking Question: Are/were you a smoker prior to your emphysema diagnosis? If you've stopped, what worked for you?
Emphysema - Rehabilitation Question: Please share suggestions and tips for exercising and rehabilitating to control your emphysema.

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