Patient Comments: Celiac Disease - Symptoms

The symptoms of celiac disease can vary greatly from patient to patient. What were your symptoms at the onset of your disease?

Published: June 10

I had severe fatigue, eye problems, and tingling in my hands and feet for several months. It made no sense as I am a fairly active, generally healthy woman. Then I developed pain and constant bloating in my upper abdomen and started becoming nauseated after eating. After I spent two days not eating due to nausea, I went to see a gastroenterologist. I had an endoscopy which found blunted villi and chronic inflammatory cells. Blood and genetic tests confirmed the diagnosis. I've been on the gluten-free diet for three months now. I'm back to my usual, active self. All the extra-intestinal symptoms have disappeared.

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Published: June 09

My period stopped, I've had 3 in 6 years. I developed an unscratchable itch on my buttocks and outer vagina. My stomach started becoming distended at the top under my rib cage .It gets hard and there is discomfort. I feel nauseous and develop lower back pain at the onset of these symptoms. My eyes also become red or discolored. I alternate between diarrhea and constipation. Sometimes the symptoms stop for a week or two, then come back. During more serious outbreaks, I feel like I have the flu. Feverish, headachy, nauseous, tired, hollow feeling. I have a lot more gas than I used to. It's an awful thing to live with and I'm trying to modify my diet, which helps.

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Comment from: jyoti, 65-74 Female (Patient) Published: August 28

I have just been diagnosed celiac disease. I suffer greatly from indigestion, lack of gas release, burning in chest, loose motion, heaviness in the abdominal area, nausea, etc.

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Comment from: Stuffed UP, 65-74 Female (Patient) Published: August 14

I have not been diagnosed but have allergic responses when I consume wheat or foods containing gluten. My nasal passages swell as well as my wind pipe making it almost impossible to breathe. I also get dizzy, have poor balance, muscle weakness and leg cramps. I also feel bloated in my stomach often after eating even when I carefully avoid gluten. I have been diagnosed with sleep apnea and use a CPAP machine but often have to remove the mask due to my nasal passages swelling making it very difficult to breathe. I lack energy and my memory has been affected. I have had this problem for many years and I am now 70.

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Comment from: Em, 25-34 Female (Patient) Published: August 05

I visited the doctor because I was simply feeling very tired all the time. I was very shocked to discover that I had celiac disease, as I had no other symptoms.

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Published: July 01

My symptoms were severe pain or sensitivity in my stomach and uncomfortable gas and loose stools. I was also tired all the time.

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Patient Comments

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Celiac Disease - Diagnosis Question: How was your celiac disease diagnosed?
Celiac Disease - Treatment Question: What kinds of treatment have you tried for your celiac disease?
Celiac Disease - Diet Question: Discuss the dietary changes you've made to manage your celiac disease. Has your condition improved?
Celiac Disease - Associated Diseases Question: What associated diseases do you have in concurrence with celiac disease?

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