Patient Comments: Bronchiectasis - Treatment

In what ways are you being treated for bronchiectasis?

Comment from: Mikey389, 55-64 Male (Patient) Published: May 22

I was diagnosed as an asthmatic, although after 12 years of marginally being treated, one wise doctor said "you don't look like an asthmatic!" I began to ignore the issues and live life with the marginal interference. At 55, I was diagnosed with lung cancer. Since I had been coughing very hard for years, they thought that was the answer. Part of my left lower lobe was removed, but my cough remained. A few more years and they thought they identified it – bronchiectasis. I went to a top medical center, where they diagnosed me with another very rare disease called tracheobronchomalacia (TBM). With the help of my wife, they also found I had Mycobacterium Avium Complex (MAC), a lung infection. I am doing pretty well, and have learned lung hygiene is primary, and should always be considered. Progressive damage should be relatively slow by keeping my lungs clean, and the MAC appears to be under control, if not regression. The TBM is managed by continuous positive airway pressure (CPAP), which gives me airway pressure to push the airway open. The diagnosis was a long road with many people just shrugging their shoulders. We do not know if some cancer is still sitting around in the lungs; I have refused any more CAT scans. The main thing to be remembered, in my opinion, is to breathe healthy air and treat your lungs well.

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Bronchiectasis - Symptoms Question: Describe your symptoms associated with bronchiectasis.
Bronchiectasis - Causes Question: If known, what was the cause of your bronchiectasis?
Bronchiectasis - Diagnosis Question: Please discuss how your bronchiectasis was diagnosed.

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