Patient Comments: Brain Aneurysm - Describe Your Experience

Please describe your experience with brain aneurysm.

Comment from: sheila, 35-44 Female (Patient) Published: October 31

When my aneurism burst I got dizzy and sick with my stomach. I lay down and went to sleep for a while, when I awoke I wasn't dizzy any more but I had a bad head ache for 6 days. I assumed I had caught the flu, I had been around friends who simultaneously got the flu from each other. I had never had bad headaches and this was the worst. My mom suffered from migraines so I thought I was going to be like mom with migraines. I was wrong; on the 6th day in the early morning paralysis started setting in and my tummy got upset. An ambulance was called and for the next 23 days I spent in intensive care with a touch and go prognosis. They had discovered the problem with a spinal tap and an MRI; they treated me for high blood pressure, apparently it is what caused it to burst. They coiled it 3 times, apparently my veins on the brain are tiny. I am now receiving annual angiograms to monitor a second aneurism on the opposite side that has not burst. It is potentially fatal because of the area it is in and I've been told that I will experience very different symptoms.

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Comment from: karliexojordan, 13-18 Female (Patient) Published: December 30

I'm 17 and I just had two aneurysms clipped on November 18th. The way it was discovered was accidentally through and MRI. For a few months I had been having blackouts in my right eye that lasted 1-5 minutes. I had these every few months. Finally, I got it checked and that is how it was found. I had one large one, and a smaller one forming. My grandfather and great uncle died from ruptured aneurysms, so I am at risk because of heredity. The artery that these were found on is very weak and I have a chance of getting another. I went to Brigham and Women's Hospital in Boston for my surgery, and to the Children's Hospital for recovery. The doctors that I had seem to think that the eye blackouts are not related to the aneurysm. It is still a mystery. I've had some complications since my surgery, and right now I'm waiting for results that will determine whether I had a seizure, stroke, or if have a blood clot, or numerous other possibilities. This was a terrifying experience for me, and I like to share my story because I am proud of myself and how far I have come. I am so thankful to be here today.

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Comment from: suzette, 45-54 Female (Patient) Published: November 16

In 2004, I experienced a tremendous headache. It seemed to grow stronger over several hours. I experienced a flow of blood run down the inside of my head right above my ear. I felt very delirious and scared. Hours later, I went to the emergency room and after several more hours of scans, I was told I had a ruptured brain aneurysm. I was still coherent, but the pain in my head was unbearable. I felt like my skull would crack open. They prepped me for surgery. Six hours later, my doctor had completed the surgery and clipped my aneurysm. I experience tremendous headaches for days while I was hospitalized. I remained completely coherent. Weeks later, I recovered beautifully and resumed a normal life. Two years later, I insisted on a follow up. The radiologist found another aneurysm not quite as large as the first one. I waited 3 months for surgery. Remarkably, I survived a second surgery and my aneurysm was clipped. I am living a perfectly healthy and normal life now with no repercussions at all. I have heard so many terrible stories of patients that haven't been as fortunate. I want to share my story to give hope to others. God has blessed my life, and for that, I am thankful every day. Please know that there is hope. You would never know anything was ever wrong with me. It is truly a miracle.

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Comment from: c wood, 35-44 Female (Patient) Published: November 13

Without the slightest warning at the age of 36 I had a ruptured brain aneurysm. My head felt like it was in a vice I was constantly sick, and I could not move my neck. I was taken to the local hospital and then moved to the best place to be if you are unlucky enough to get one, The Western General Edinburgh. I was operated on for about 5 hours, and coils were used to stem the bleeding. I made a full recovery. That was 8 years ago and I am grateful that due to the help I received I am still here with my children and husband. It is important to know this condition does not always mean death or disability.

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Comment from: A loving friend, 55-64 Female Published: November 09

In early November 2009, a young, 60-year old, energetic and full of the zest of life woman, was gardening in her yard and suffered a massive brain aneurysm. She was found unconscious in the yard, with perhaps 10-minutes passing from when last interacted with. CPR was administered, till the ambulance arrived and transported her to the hospital. She was not breathing. At the hospital, an emergency procedure was attempted that doctors may have called a "CAP", said was only successful 10% of the time and that she may not live through the night. The next day, after no responses, assisted breathing and no 'lower brain' activity, the decision was made to pull the life support, after the doctor's signing of a death certificate and waiting 12-hours more to coordinate organ donor removing. There were no apparent signs of its impending arrival and likely not much that could have been done to prevent it. A tragic and sudden loss of a wonderful life was shockingly realized. Yet..., one can also feel a sense of peace, with a twinkling in the eye, how unfair these circumstances are. She got to live a wonderfully, robust and excitingly, charmed life and then was allowed to 'pass' in such a smooth, sudden fashion, with no prolonged pain, anguish or second thoughts about it. With that in mind, though dearly missed already, since we all have to go, truly, what a fittingly lovely and quick way for it to happen. It was just 30-years too soon.

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Brain Aneurysm - Treatments Question: How was your brain aneurysm treated?
Aneurysm - Symptoms Question: What were the symptoms of your brain aneurysm?
Brain Aneurysm - Diagnosis Question: How was your brain aneurysm diagnosed?

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